taking steroids?

by Karrie
(Canada)

Im 17 years old and I just found out a week ago that I have crohns disease. Im taking 8 steroid pills plus 3 calcium pills plus 2 vitamin B pills a day to make it go in to remission. I was just wounding if anyone else did this and what you think about it

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I have Crohns too NEW
by:

I got diagnosed with crohns march 7 I took steriods for a couple months, 22 pills a day. I have a major case. You will get fat and you will be hungry. you will probably wake up at 2 in the morning ready to do stuff. You will be fine. trust me. enjoy being fat. make jokes.

crohns NEW
by: pat

Hello
iJUST READ ABOUT THE THIS YOUNG PERSON, FINDING OUT SHE/HE HAS CROHNS DESEASE, MY
GRANDAUGHTER HAVE HAD PROBLEMS FOR MONTHS WITH PAIN, HAD HER APPENDIX OUT ABOUT 9WEEKS AGO, STILL IN ALOT OF PAIN FRIGHTENED TO EAT, TOOK HER BACK INTO HOSPITAL, HAD CAMERA, SHES TURNING 17YRS august, has crohns, have to have camera again Sep , she is worried as she is coming down off the steriods it will be 4next week and has slight pain at times, she is keeping to her diet, i hope that helps

crohns NEW
by: pat

Hello
iJUST READ ABOUT THE THIS YOUNG PERSON, FINDING OUT SHE/HE HAS CROHNS DESEASE, MY
GRANDAUGHTER HAVE HAD PROBLEMS FOR MONTHS WITH PAIN, HAD HER APPENDIX OUT ABOUT 9WEEKS AGO, STILL IN ALOT OF PAIN FRIGHTENED TO EAT, TOOK HER BACK INTO HOSPITAL, HAD CAMERA, SHES TURNING 17YRS august, has crohns, have to have camera again Sep , she is worried as she is coming down off the steriods it will be 4next week and has slight pain at times, she is keeping to her diet, i hope that helps

blah
by: Anonymous

And definitely keep up on the calcium, your teeth and bones will thank you later.

Crohn's patient since 1973
by: Jennie

Be careful with steroids. Prednisone has 82 side affects. If you stay on lt longer than a few weeks they may start causing problems. Always taper off of them slowly. If you don't it will make you sick.
Jennie

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Steroids and Weight Gain

by Danielle
(Australia)

I have been diagnosed for 1 year now and im still not of the steroids my weight gain is continualy getting me down as ive never been this big before my question is "What is the usual period of time to stay on steroids"? and "after you come of them do you drop weight rapidly"?. I know i sound vain whats a bit of weight compared to an life long illness but this is always on my mind and I need help if anyone knows the answer.

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Steroids and weight gain
by: Anonymous

I just stopped taking them. I went from 135 to 260 and the doctor kept telling me I needed to keep my weight down. I couldn't so I just quit taking the steroids I have lost 55 pounds but it has been slow. I don't say for you to do it, because each person is different I have other diseases with my Chron's that fight against each other which makes mine different.

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Steroid Psychosis

by Lyndseylou
(England)

I too have had this terrifying experience and my heart goes out to your son who is experiencing these awful side effects.

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Steroid Induced Psychosis

I am the 45 year old mom of a 24 year old male who had a colon resection at the age of 17. He was scheduled for emergency surgery as the DR. believed him to possibly have bowel cancer. After removing 2 1/2 feet of his intestines and re-attaching the bowel to avoid a coloscopy bag we were told he had Crohn's Disease. The problems that have developed over the past 7 years are now mental issues. He admitted himself into a hospital 2 years ago were the medical professionals believed him to be suffering from psychosis (possible schizophrenia)directly related to his prescribed Crohn's medication. He refused to follow through with treatment and left the area before they could have him admitted into an institution. I am not sure what steroid he's on or meds he's taking as my hands are tied to obtain that information because of his age. Has anyone else experienced mental illness related to the medication for this disease? My son refuses to believe there is anything wrong with him but exhibits major dillusions and beleives the world is conspiring to take him down. I'm desperate for information as I don't know where to turn and when I do go knocking on doors I want all the information I can possibly get so this can't be ignored any longer. Anything is appreciated. Thanks.

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Crohn's Treament and mental disorders
by: Anonymous

Hi- I have a 19 y/o daughter who has had alot of mental problems since being dx with Crohn's. I have been recently told that she probable has borderline personality disorder. I have been thinking back to the medications she has been on and am starting to think that her personality difficulties started after being on prednisone, Imuran. I am at a loss right now in trying to figure this all out. I am trying to find out if the meds she was on have really messed her up. I need to hear from others regarding this issue.

psycosis
by: Anonymous

My daughter has chrons and she developed psycosis
she was not on steroids. She has a high infamitory responce in her blood levels she feels that everyone is looking at her and that she is spaced out. She does not take drugs. She was put into a psyc hospital and started on medication for that, it is a long slow process.
she needs lots of structured support inall areas to get her life back

Me too...
by: Lyndseylou

like Kyle, who left a post, I too have been where your son is, so please reassure him that it is not just him, (and he is not going mad.)Your practicioner can supervise a quicker reduction of prednisolone. I used Budesonide instead, (it is a steroid still, but absorbed in the bowel and does not have the same effects as prednisolone. Remicade, (we call it Infliximab in the UK,) is definitely worth trying as is Azathyroprine, (Imuran,) and similar immuno-supressants. It took me a full 12 months to feel 'normal' after coming off prednisolone. I as paranoid, suicidal and laughing manically minute and sobbing the next. However, I did start feeling improvement in 2 to 3 months. Prednisolone is a cheap treatment but not suitable for all as you now know, so please insist your son has access to other treatments. I know you will give him the support he needs until he recovers, (and he will.)My best wishes 2 you and your son.

Not alone
by: Kyle

Mam i have had Crohns disease for about 4 years now and i was put on prednisone and had many of the same problems you described you son was having...I thought i was losing my mind also but after getting off the drugs and getting onto remicade (I suffered for a while with prednisone withdrawals) i am almost back to normal a year later. Their is hope...please have him check all his medication options...prednisone is not good long term or even short term for some and mental side effects are apart of it

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PLEASE HELP....I NEED ADVICE AND AM VERY SCARED...STEROIDS???

by Mia
(New York)

Hello, I was diognosed over a year ago and have felt horrible since. I am ALWAYS running to the bathroom and have lost over 30 pounds in the last 6 months. I can't afford to lose anymore weight at all. I am scared it is getting worse and I'm getting depressed. I just got another CAT scan about 3 weeks ago and it keeps showing the same exact thing, there is inflamation in the area where the small and large intestines meet. I had a small bowel series done and the same thing is showing and nothing has improved in over a year. I went to the supermarket with my daughter last night and had to run out and leave the groceries. I was trying to find a bathroom (because it was after 9 and the one in the supermarket was closed) and in 2 minutes found myself going on myself (sorry for to much information). This has never happened to me before and not only am I very embarressed but now very depressed. I keep thinking I am going to end up in the hospital having emergency surgery to remove that part of my intestines and I am so scared. My GI doctor wanted me to start remicaid but I am way to scared to try that. He never even tried me on anything else. I was never put on steroids or anything until January when he put me on Entocort EC but it doesn't seem to be strong enough. I am only on Entocort and asacol for crohn's. I have children and they are worried about me, my 13 year old told me she is scared I am going to die. I am starting to get scared too, can you die from this? I was told I had mild to moderate chrohn's, I don't have severe pain that people have explained but now after using the bathroom am starting to feel something exactly where they said the inflamation is. It will usually bother me for a few hours and then will subside. I also suffer from A LOT of hemroids after giving birth to my 3 year old son, they are in and out and it's just horrible. Sorry for all this information, I am feeling depressed and really needed a ear.

I have stopped eating all fast foods, fried foods, and spicey foods. I also cut down on red meat A LOT. Recently, I stopped drinking soda and only drink gaterade and water and it seemed to help a little but I have no clue what happened yesterday. I am so hungry and I would love to know what I could eat if and start feeling better. I have not been in remission from this since I have found out I had it and am thinking about asking the doctor to let me try the steroid prednison. My doctor didn't suggest it and put me on Entocort because I already suffer from anxiety and i am very sensitive to mediction so he was thinking about the side effects. Has anyone took this steroid and what kind of side effects did you get? I am not worried about weight gain because I need it but am worried about being easily angered (because I have kids), getting very depressed, making the anxiety and panic attacks worse, or anything else. If anyone can let me know anything I would appreciate it because I don't want to die. I want to feel normal again for at least a little while :-(. Thank You for reading.

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Taking Entocort
by: Clay

I took Entocort for about a year after finding out about my Crohn's. I think it helped a great deal. I was feeling better than I had in a long time...my movements were finally normal again...almost like I was a 16 year old boy again. I started gaining all kinds of weight. I stick to a pretty strict Crohn's diet and workout 3 days a week. One thing you need to pay attention to is probiotics. My wife makes our own yogurt....meant to replenish the good baceteria in your gut. It's amazing to see all the sick Crohn's people around...I think all the years of fatty, sugary, processed foods is finally catching up to us. Work on replenishing the good bacteria!

After several months, I started having terrible back pains in the morning which would go away once I started moving around. It was like having arthritus or something. I attributed it to Entocort and slowly took myself off the steroid. My back got better immediately. I don't take anything now and I do pretty well. I had one flare-up since getting off the steroid. It was because I ate a big piece of chocolate cake and some ice cream. I got off my diet and BAM, it lets me know that I can't do crap like that.

So don't stress out about it, just pay attention to what your body is telling you. Stick to a diet full of lean meats, veggies, fruits, honey and nuts AND HOMEMADE YOGURT. Everyone is different so some of things you eat...your body will let you know whether you can handle them or not.

I realize some Crohn's is worse than others...I hope your's isn't as bad as some of the people I read about.

Good Luck.

17 year old daughter with Crohns
by: Anonymous

My daughter (age 17) was diagnosed with Crohns about 3 months ago, I can say from her experience that Steroids are not good for your body at all, although they did seem to help my daughter. She is now off steroids and seems to be doing Okay. She just had her 3rd Remicade infusion today. Remicade has been a "wonder drug" for her. The cost of Remicade is VERY expensive (7K each infusion). She also takes Pentasa, asacol, 6mp(which is a oral chemo-therpay drug), dicyclomine, and varies other daily meds. With the combination of these drugs she has had only 1 flare up. She has severe Crohns. This is a "livable" disease but have to always take your meds & eat right. This is a very expensive diease, her oral meds run about $1,500.00 a month (few of which are covered by insurance) Keep your faith, and I hope things will get better for you. If you need someone to talk with my email is deverscb@hotmail.com

i know how u feel
by: Suzanne

I Was put on this Prednisolone alot in my time with flare ups i could never put weight on either but altho it made me very moody it relived my symtoms but i dont think any1 was able 4 my moods, every1 is different but as i say u dont know till u try.. i hope u find a soloution.. My thoughts are with u. any more questions u can email me suzzanne2138@yahoo.ie

steroids
by: Anonymous

hi there reading ur post was like reading my very own ?? i too get anxiety and panic and on entorcort i hav felt the anxiety has worsened but had never been told that its a side effect the steroids haven really helped me this time so im havin surgery my god i would give anything to feel well for a day x but i hav to say i took the same steroids bout 4mnth ago and felt fantastic it helped while on them its just this time my disease i guess has worsenned ?and mentally i was better wen taking them unlike this time x but its worth a try u may be amazing on them hundreds of people r and r very different i do hope u get some releif if u ever wanna text or chat im here on 07939066190 xx take care ..jo

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side effects of steroids

by Pam

what type of side effects can I expect if my doctor puts me on steroids to fight a flare up?

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True information is shared NEW
by: howarkan

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effects taking steriods NEW
by: pat

My grandaughter on 8steriods now down to 4, she is getting headaches and her skin is not to good,

Thanks
by: Pam

Thanks for your comments. I am going on Prednisone and will hope for the best.

steroid side effects
by: tod

It really depends upon which steroid you are put on and how your own body interacts with that particular drug.
Entocort is so mild that even on a higher dose i feel as if the only thing in my body that is reacting is my inflamation(in as positive way, i might add).
Prednisone tends to have much more adverse reactions, though. Some common side affects are bloating, weight gain, anxiety, nervousness, restlessness, insomnia etc. if you are a diabetic you may have drastic fluctuations in blood sugar levels as well.
Cortenema reactions are usually much less severe and really target the inflamation more directly.
Unfortunately, i feel, steroids as a therapy for flare ups is a hit and miss game.
i hater them, but sometimes they are a neccessary evil, i'm afraid.

just some of my side effects
by: Anonymous

the side effects i got from steriods were a freakin moustache lol, little sweat pimples all over my cheast and arms, mood swings, blurry vision sometimes, joint pains.. and i think thats all lol i get other side effect but i think they r from my other tablets.. look up on the net the side effects. it will show u a huge list of them that u might get. i just reccomend and ur doctor should anyway not to be on them longer than u have to be.

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Steroids for Crohns and Sinus Infections?

by Emily
(PA)

Does anyone else taking steriods seems to get sinus infections often? I take 3mg of Entocort a day. I got 2 sinus infections over the summer and one recently. I feel another one starting today. I feel like I don't want to take steriods anymore because I'm tired of getting sick, but then I worry about flare-ups. When I forget to take my medicine, my Cron's gets worse right away. Any advice would be helpful.

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21 an still going
by: Anonymous

omega 3 capsules can help you deal with your skin condotion.i'm 21 and been put on pentasa.my only concern is to improve my weight issue..i'm very thin i eat lotts of food but u kno..... :(

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why arent steroids working well any more for Crohns

questions from me why are steroids not working very well any more for my mums chrohns disece

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why arent steroids working well any more for Crohns NEW
by: Lydia D.

It sounds as though she just has too much inflammation in her body.

If she smokes this may be the reason and the medicines won't work as well.

Alternatively, she might not be being compliant, i.e. taking the prescribed dose.

She might not be eating properly and nutritional deficiencies will not help her gut heal.

She should not be eating the following:
- fast food, red meat,
- lentils, beans, leafy greens, etc.
- pure sugar sources - sweets, honey, syrup, chocolate,
- colas, sodas, cordials, alcohol, coffee, cocoa, etc.

She should be eating:
- potatoes, sweet potatoes, broccoli, carrots, pumpkin, cauliflower, parsnip, turnip,
- chicken, fish, shellfish, tofu,
- yoghurt,
- bananas (potassium), steamed peaches/apricots/apples/pears
- tomato juice, black/green tea, camomile/fennel tea, still water,

She should have her blood values checked and determine if she needs to take some or all of the following:

Vitamin B complex for pregnant ladies,
Iron and vitamin C,
Calcium and vitamin D,
Magnesium (for the bones),
Zinc (immune system),
Fish oil capsules (eyes, skin, etc),

http://ods.od.nih.gov/factsheets/list-VitaminsMinerals/

It is also going to depend on what other medication she is on. For drug interactions she needs to type in all her medication and supplements here: www.drugs.com or www.rxlist.com

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Crohns and azathioprine and steroids

by Angie
(Scotland)

I was diagnosed with crohns a year ago and it has affected my life immensely! Having to leave my job was worst thing as I literally lived in my bed or the toilet as I couldnt eat anything or id be sick and would be at the toilet numerous times especially in the morning! I just turned 20 and have been on and off prednisone (steroid) and have been on azathioprine for 3months. I have gained so much weight especially on my face and had terrible mood swings due to steroids. Now I am on azathioprine which I think it is the worst medication!! also that I am still young my hair is falling out my eye lashes are very thin, have noticed lots of red spots on my skin everywhere mostly on my chest and I am still sick at times when I am eating but my bowels are fine for now. Also having blood tests every week then monthly is annoying. Recently went to my specialist and out of the blue he said I would probably be on this medication for the rest of my life> to this point I am really upset and want to try something else instead of this drug!

Was wondering if anyone has been on something slightly better that doesnt have much side effects? I get more depressed everyday and still cant lose the weight from the steroids since december. I dont look the same person anymore....these medications I think are worse than the illness itself lol! ;'(

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Chrome disease NEW
by: Stephanie

I have bee on Azathioprine for 10 years going on 11 years I been taking it since I was 15.. I haven't gain any weight with it.. But I do know there's a lot of bad things that could happen by taking this medicine.. I also started taking Mesalamine for "pain".. But I don't think it's working.. I hope you fine something else than Azathioprine.. I tried but my dr. didn't want to give me a diff. medicinešŸ˜« I hope you feel betteršŸ˜ƒ

Chrome disease NEW
by: Stephanie

I have bee on Azathioprine for 10 years going on 11 years I been taking it since I was 15.. I haven't gain any weight with it.. But I do know there's a lot of bad things that could happen by taking this medicine.. I also started taking Mesalamine for "pain".. But I don't think it's working.. I hope you fine something else than Azathioprine.. I tried but my dr. didn't want to give me a diff. medicinešŸ˜« I hope you feel betteršŸ˜ƒ

read NEW
by: Anonymous

http://www.amazon.com/Conversations-With-God-Uncommon-Dialogue/dp/0399142789

read this book, it is the only thing can can help you at your stage of the disease

Research anti-MAP meds on the Internet... NEW
by: Peter Bray

Ask your gastroenterologist what he knows about
anti-MAP antibiotics...then have him or her google Dr. Tom Borody in Australia or Professor John Hermon-Taylor in England, or Dr. William Chamberlin in Texas and learn what others are doing to kill the mycobacterium avium paratuberculosis bacteria in Johne's Disease infected dairy cows...it's a global problem, and a human tragedy of growing proportions...Google for Professor John Hermon-Taylor's scientific papers or check the IBD videos on www.YouTube.com from the 2009 International Colloquium on Paratuberculosis in Minneapolis...Mankind's immune-suppressing drugs are CRAP and worthless...they only attempt to suppress the symptoms while allowing the real, bacteriological pathogens to eat away at your gut tissues, causing repeated surgeries and death...that's the blunt truth and my daughter Cathy, 44 is now gone, done, passed away Feb.24th...after 24 years of fighting Crohn's and a looped, temporary ileostomy last April, which only extended her life by 10 months---It's time to stop this madness on this planet! Peter Bray, Benicia, CA Join my "War on Crohn's" e-mail me at PetrBray@AOL.com

Crohns NEW
by: Mary

Been on prednisne since Nov 2011 and started Humira in Jan 2012, am now weaning off steroids. The meds are worse than the disease! AI have ages greatly since Nov. I have made up my mind that I am not going back on them. If the humira doesn't work I will let the disease take it's course,

Crohns NEW
by: Mary

Been on prednisne since Nov 2011 and started Humira in Jan 2012, am now weaning off steroids. The meds are worse than the disease! AI have ages greatly since Nov. I have made up my mind that I am not going back on them. If the humira doesn't work I will let the disease take it's course,

Crohns NEW
by: Mary

Been on prednisne since Nov 2011 and started Humira in Jan 2012, am now weaning off steroids. The meds are worse than the disease! AI have ages greatly since Nov. I have made up my mind that I am not going back on them. If the humira doesn't work I will let the disease take it's course,

Steroids were horrific... NEW
by: Peter Bray

In our experience, Prednisone steroids were horrific. They led Cathy to steroid psychosis every time and psych ward hospitalizations, manic behavior and worse.Then anti-psychotic drugs Haldol and Cogentin, and sometimes months of resdential psych ward stays...I say it's way beyond time to CURE Crohns disease and give up this pharmaceutical mine field of horrific crap. Read about Johne's disease-infected dairy cows and MAP, mycobacterium avium paratuberculosis and the dairy industry, the fact that pasteurization does not kill MAP, and why isn't the US government doing somethihg about it like England and Ireland? Cure Crohn's, remove the pathogens from the food chain..My daughter Cathy,44 is now dead after 24 years of useless western medications and surgery for a temporary, looped ileostomy last April...February 24th, her heart stopped twice the ER and ICU...Stop this madness! How many more have to die to fund pharmaceutical profits in the US?? Peter Bray, Benicia, CA I'll send my "War on Crohns" series of articles free anywhere on the planet...write to me at PetrBray@AOL.com

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Steroids & Crohns

Has steroids made anyone's crohns worse? Since I started 20 mg on Saturday, I seem to be doing worse.

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by: Anonymous

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Steroids & Crohns NEW
by: Lydia D.

Keep a patient food/mood/symptoms/medication diary. I refer you to the following:

http://beyondibd.com/blog/treatment/how-keeping-a-diary-can-improve-your-health/

CDAI
http://www.ibdjohn.com/cdai/

Bristol Stool Scale
http://en.wikipedia.org/wiki/Bristol_Stool_Scale

The comparative pain scale (no pain 0, 10 excrutiating pain)
http://www.tipna.org/info/documents/ComparativePainScale.htm

The CDAI is particularly useful for establishing where your disease is at. If you quantify your illness, it makes it easier for the doctors to understand. Keep on weighing yourself and take your temperature daily. Have you got an infection?

Very good short description of Crohn's.
http://www.crohns.org/congress/submission00/appendix4.htm

Comic - Everything you never wanted to know about Crohn's disease
http://ventedspleen.com/blog/2007/10/22/24-hour-comic-everything-you-never-wanted-to-know-about-crohns-disease/

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