Long life decision
My fiance just had an ileostomy about a month ago after 25 years of coping with Crohn's. We were told by the surgeon that the procedure would be reversed in a few months, and then told by the GI that he would have to go back on medicine for maintenance to try and keep the disease quiet for a while. Even after the affected areas were removed there are no guarantees that the disease wont come back. My fiance has now gain back his weight, feels and looks strong, has energy that I have never in the 5 yrs together have seen. He is a new man!!! But just today he went for a consult to a top Crohn's specialist, and he was told that it would be best for him NOT to take any meds and consider keeping the ostomy.
The doctors reasons for keeping the ostomy were as follows: *Less chance of Crohn's coming back, *no meds, *less likelyhood of getting colon cancer.
Yes, all of these sound great right? The surgeon would have to go in to remove the ENTIRE colon..and my fiance would have a permanent ostomy, even thought he doesn't mind the "bag" and looks at it as a minor inconvenience.
Has anyone out there experienced this situation? Please give me some words of wisdom...
I am torn...is it right for me to feel like we've been cheated out of a normal life due to this disease?