I've been suffering for ages and now I know it can only be Crohns
It all started six years back or more when from being a gym obsessive and hyperactive person who only slept 4-6 hours a night I now take naps in the afternoon and have been a virtual hermit for over a year.
Luckily I was able to take early retirement from work or I would be in a terrible mess, but on top of the abdominal problems, when I had a scan a giant cyst in my right kidney was found which turned out to be malignant and and the whole organ had to be removed.
The investigation had started over my digestive ailments and my GP and I thought that this may have been the problem. Anyway during my hospital stay of 10-14 days I insisted on only eating soup to avoid the problems I knew I would face. Recently I have also gone 10 days without food to try and stop the suffering. The reaction of the hospital consultant was to roll his eyes as if I were behaving like an anorexic.
It is only by reading other peoples accounts of this disease that I know I have absolutely classic symptoms and am devastated that no specialist ever picked this up. The only way I managed to resolve the anal pain I was suffering was to use an analgaesic gel that I had had prescribed for another complaint - and my GP rebuked me for that.
I now know that there are specific gels for this purpose and liquid food replacements and none have ever been offered to me - LEAVING ME TO LIVE ON SOUP IN HOSPITAL. It's hardly believable but true.
I have been waitng to see a Gastroenterologist since April this year and if it upsets him that I have diagnosed myself I'll have to apologise that none of his colleagues appear to have the most basic knowledge of the disease.
Pains to the right side of belly button
Constipation and diahorrea
Severe anal irritation leading to bleeding
I had a 'boi' close to my anus that made sitting painful and wouldn't disappear for months - possible fistula.
Many foods that i thought were soothing my digestion merely made it worse - examples ice cream, dairy products and fibre, though once activated my system won't accept food at all.
Recently I have noticed that meat tends to make me feel ill and faint but it stops my bowels working, I'll investigate if this is caused by my digestive system having difficult handling it or breaking it down. That has good and bad potential effects.