Is it selfish to want to stay home and take care of myself??
Hello, my name is Andrea. I am 27, and I was recently diagnosed with Crohn's - although I have had the symptoms for 8 years! For the last 2 years I have been in and out of work. I have stayed with the same company, but switched jobs at the end of last year because my other job was very demanding and stressful. I was on sick leave for 2 months due to CFS this year, and then 10 days when I was diagnosed with Crohn's in the hospital. I have used up all of my sick and vacation time, I often dock hours or work on weekends to make up hours, and have asked my boss several times let me work part-time. I work from home sometimes, which is nice, but usually I end up falling asleep in the middle of it. I'm really on the verge of getting fired. Is it ok for me to feel like the best thing for me, and my marriage, is to stay home and take care of myself? Sometimes I think my family is more worried about me losing my job. I know they are concerned about my health, but if they were really, wouldn't they want what's best for me??? I've tried to be strong - I'm always been a fighter, very determined person, but that's gone. I just want a normal life and to be able to be a good wife. I've only been married since last July and have been sick our entire marriage. I'd like to stabilize my health, and then get pregnant.
BTW, in addition to Crohn's, last year I had Chronic Fatigue Syndrome,which meant many days I would sleep 20 hours and still not feel rested. My entire life was affected. It was awful. If I did any type of physical activity, even things like bowling, I would be wiped out for days! To top that off, I have IC, a chronic bladder condition that causes me a lot of pain as well. Oh yea, did I mention I had a pre-cancerous polyp removed this year or that I had an intestinal parasite last year? I also had some heart problems, which have calmed down thankfully. It's 2:30 in the morning, and I just need someone to understand...