Crohn's taking everything away from me
Hi, I am 22 years old and i have recently been diagnosed with Crohn's Disease. I've had priblems with my bowel and stomach for a few years, but I have always been fobbed off by the doctors. They told me I had IBS, and then pernicious anaemia which i had a lot of iron injections for. Finally after years of pain, which made things really hard for me growing up and through my school life, I was sent to a bowel specialist in the hopsital. After a few tests, she told me i had Crohn's.
I was put straight on Pentasa, but unforunately it really did not agree with me. I put on a lot of weight in a very short space of time, and suffered from horrible heartburn, so much i visited the hospital on a few occassions. My specialist in the hospital is nearly impossible to see, and there is a massive waiting list. My doctor told me to cut out the medication completely, to which i did, but that made the symptoms of my Crohn's very severe. The doctors just don't seem to listen to me or my needs, and always fob me off. The only person who listens and tries to help is my specialist, but i just can't get to see her quick enough!
I feel like everything is being taken away from me, my life is being turned upside down. I work full time, and I am finding it so hard to hold full time work down. I have been with my boyfriend for four and a half years, and i feel like it is runing our relationship. I get really down from time to time, and sometime I take things out on him which I really don't want to. We have talked about strating our own family as well, but i am so scared to and don't think it is a good idea considering how ill i am right now.
It is so frustrating, i feel i can't accomplish anything i want to. It would be nice to hear how other people cope with Crohm's, and if anyone knows how i can get the proper help