Crohn's Disease- The devil I know

by janette Butt
(Blaketown, Nl, Canada)

Hello everybody. My name is jen and I am new to this forum. I need to connect with others who have danced with this devil we call Crohn's. I was diagnosed in 1998 but I guess, like alot of you, I was sick for several years b4 that. By the time I did get a correct diagnosis, I had about 18 inches of my small bowel ( terminal ilieum) diseased to the point that it resembled a hard plastic rubber hose. 12 years and two surgeries later, here I am. I am not working and I am going downhill. I wanted to ask you guys, have any of your docs perscribed narcotics for you? I have been on narcotics for years because of the pain from strictures and scar tissue and I am at the point where I don't know if I even need them anymore...I think its the morphine thats making me go downhill. I am desperate. I have been having recurring urinary tract infections that won't go away (even the urologist says that i have to live with it, be in tune with my body and get treatment when it flares up) I wake up every night with cold sweats and my skin is cold and clammy most of the time and I really don't know if its an infection or the crohn's or morphine withdrawal. all I know is that I feel like crap and its like a vicious circle.. I would appreciate any suggestions or advise or even just a chat with someone who knows what I am going thru God bless you all .

Click here to post comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Ask A Question About Crohn's Disease.

Enjoy this page? Please pay it forward. Here's how...

Would you prefer to share this page with others by linking to it?

  1. Click on the HTML link code below.
  2. Copy and paste it, adding a note of your own, into your blog, a Web page, forums, a blog comment, your Facebook account, or anywhere that someone would find this page valuable.