crohn's disease of the esophagus

I have had esophogeal crohn's for a few years and am looking for others that also have it. I am looking for advice on diet and managing symptoms etc.

Comments for crohn's disease of the esophagus

Click here to add your own comments NEW
by: makarow

I am really glad to read it and being able to share my thoughts on it.
I want to use this opportunity to say that I really love this blog. It is an amazing resource of information for my working. Thank you so much.

Education NEW
by: Anonymous

The process foot he success and triumph is very vital and interesting the knowledge is adopted and improved for the ukessayservice service development of the___14 mind and physical features of the human beings the knowledge is very versatile and dynamic he skills are employed for the betterment and efficiency.

crohn's disease of the esophagus NEW
by: Lydia D.

Unfortunately, you are a very rare case and the first person I have met with (diagnosed) Crohn's of the oesophagus.

I suggest, if you haven't done it already, that you search at PubMed for papers to discuss with your doctors: is also a good resource for specialist medical information (hassle-free log-in required - no strings attached).

I would also refer you to your country's clinical guidelines for the management of Crohn's/IBD.

It would also be worth keeping a patient food/mood/symptom/medication/supplement diary. This will help you better monitor your health and help you to communicate with your doctors. I refer you to the following:

CDAI Crohn's daily activity index

Bristol Stool Scale

The comparative pain scale (no pain 0, 10 excrutiating pain)

Learn how to communicate with your doctors

Other than that I suspect that diet is particularly important in your case - soft, well-chewed foods, etc. You might have to sip Ensure or equivalent in order to get some nutrition down you. I suggest that you discuss your diet with a nutritionist.

Sorry, that I can't help you more.

All the best,

Lydia D.

Esophagus Crohn's? NEW
by: Peter Bray

Crohn's is systemic, it can occur anywhere in the system, presumably where acidity/alkalinity is best to nurture MAP, Mycobacterium avium paratuberculosis
from Johne's Disease-infected dairy cows...whose pathogens are NOT killed by pasteurization...have you been diagnosed by a real gastroenterologist?

E-mail me at and I will send you what I know, my daughter Cathy, 44 died on 2/24/12 after fighting Crohn's for 24 years--I will send you what I know--same goes for any Crohn's patient on the planet, Join our "WAR on Crohn's Disease."

Benicia, CA USA

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Ask A Question About Crohn's Disease.