Crohn's Disease for 35 years
I was diagnosed with Chrohn's when I was 15 years old (I'm now 50) and for the first 5 years went through the whole gamut of hospitalization, fissures, medication until I entered a period where I learned to deal with the symptoms and would consider myself to have a mild case of Crohn's Disease.
For the next 10 years I was medicine free (well, a little Imodium now and then and always B12 shots), worked a high pressure, high stress job and then got pregnant.
I never felt better during my pregnancy but had to be watched very carefully. The one thing my Dr. demanded was that I NOT work - so I didn't.
In 2003 I had a flare up that required that I go back on medication. We tried Pentasa, Asacol and Remicade but the side effects were way worse than the disease. I then landed on Entocort and Imuran and felt like a million dollars! After going through menopause, I convinced myself I was cured and stopped taking the medication.
In May of this year I started to feel terrible. I was told I had the flu and to take Advil and drink lots of water by my GP. By June I was in a full blown flare up and hospitalized put on high dose of prednisone and I'm still struggling with obstructions.
Through my entire ordeal with Crohn's I have never experienced pain like this. I am still working that high pressure, high stress job even on those days I can barely walk.
For the first time in 35 years I'm scared about my future and Crohn's.
I guess I'll just have to take it a day at a time right now but if I have any advice for any young people out there. When your in remission - you're not cured TAKE YOUR MEDICINE!!
Thanks for letting me vent.