Crohns concerns

by John O'Conner
(Miami Florida)

My 43 year old daughter has had Crohn's disease since she was 14 years old. Steriods stoped helping,and she had a total removal of her colon a little over a year ago.She has been off any medication since the operation,andappeared fine,until now she has lessions in her mouth and a lump in her neck.The doctor has done a biopsy and told her it will take 10 days for the results. We are all sick about this.Has anyone expierenced the same symptoms.
a concerned dad.
since1966 @ aol.com

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Crohn's Concerns NEW
by: Annette Young

Hello,

Thank you for writing in. I'm sorry to hear that your daughter is having such a bad time of things, I know how frustrating it is and that it must be a time of great concern.

I have heard before that some Crohn's sufferers did develop lesions in their mouths and I wanted to check out the extent of it to see what information was available and if it might help. Apparently, during the official research, only a very small percentage of people did actually develop oral lesions, the percentage being 0.5%.but these particular patients also seemed to have lesions of the oesophagus and the anal area.

The manifestation of these lesions can be deemed as the first indicator that Crohn's disease is present, sometimes up to a year before Crohn's has even been diagnosed. Now obviously I cannot confirm that these lesions are to due to Crohn's disease but there is a chance that they are indicative of the disease itself and I know that you say that your daughter is now off of all medication, so maybe this is a flare-up. Usually once on medication, you stay on medication.

I know she has suffered quite a bit but the good news is that once she learns to live with it and by this I mean understanding the disease as it affects her personally, it is possible to side step some of the problems. Flare-ups will always come and go however many people will find that their disease goes into an automatic remission and this can last weeks, months or even years. So there is hope for her.

I hope you get some more concrete advice from the doctors with the results of the tests and I wished much luck and good health for you all.

I hope this helps,

Annette

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