Confused!!! Do I have it or not!?
I wrote a post a couple of weeks ago because my doctor diagnosed me with Crohn's disease. I have been having problems with severe bleeding, diarrhoea, terrible cramps. So my doctor ordered a colonoscopy, but it came back clear. Then he ordered a small bowel follow-thru with barium. It was when I had this follow-thru that they told me I had Crohn's. I always kind of wondered if I had it since my father has it and I had so many of the symptoms, but it still upset me when they told me I had it. Well, since then, they have sent me to a specialist at a different hospital. The specialist has given me two full colonoscopies now and taken multiple biopsies (I had one done just this morning.) But he is saying the colonoscopies aren't showing anything, and the biopsies are coming back normal. He tells me I'm in muddy water, that Crohn's is hard to detect and I'm having all of the symptoms (Bleeding, diarrhoea, horrible cramps) but the colonoscopies are coming back clear. He put me on steroids a few weeks back and has now told me that they are not helping so I should wean myself off of them. I'm just up in the air right now. They said I don't have any haemorrhoids, or any ulcers, so they aren't explaining the blood. And it's not just a small amount of blood, but a lot, dark blood with clots.
So basically, I've had one hospital tell me that I had a "classic case of Crohn's," he even went as far as saying that he could use my barium x-rays in medical school because it was so typical and easy to spot. He even showed me what he said was a fistula on the x-rays. And now I have another specialist telling me he isn't sure. That I have all of the signs, but he just isn't seeing it.
My anxiety and depression is on a roller coaster, it is one thing to know what is wrong with you and another thing to be left hanging. How can my colonoscopies come back clear if I have Crohn's? If it's not crohn's then why did my doctor tell me it was and what is it if it isn't crohn's? Any advise? I'm sorry for ranting, I am just so confused right now.