all bad? and infleximab?
Hi, I’m 21 and was diagnosed with crohns only about 2 weeks ago.. i am on prednisolone and have had 1 infusion of infleximab and i am due for my second soon. I seem to be able to eat a wide variety of foods. eg vegies, cauliflower, broccoli, carrots, peas corn, sandwiches, red meats, fizzy drinks, fruits, pies, hot chips, chocolate..
I have been home from a three week hospital stay for a week now and i am feeling a lot better. I have lost more weight and am i down to 44kgs, i was 64kg 3 months ago. I am having less pain everyday and my diarreah is getting better. i really seem to be getting better everyday.. I just need to start putting weight back on to get my energy back and i think i will feel even better!
The reason I’m writing this is that reading through most of the forum, it seems that crohns disease is a lot of (i don’t no how to word it) “doom and gloom”.. Treatments not working, havening to have multiple surgeries, not being able to eat fruit and vegies (which r my fav food of all time) living with pain EVERYDAY, uncontrollable bowl movements, (which i seem to be always able to hold). Depression and heaps of others.
I was just wondering if there are many people that have gone through their disease with minimal side effects or harm? Not that I think that this disease will be easy, but it can’t be all that bad can it. I understand that i may need surgery one day and i will get flare ups and that there will be bad days. But im not going to let this disease ruin my life..
Can anyone tell me about flare ups? I no they are different for everyone but, I would just like few people to tell me how often u can get them or how often u can go without them. How long they can stay for? ect anything can help, I would just like to know a little bit about what to possibly expect..