New Crohn's

by Mellissa

I am 23 years old and have recently been diagnosed with Crohns. I have had a rough winter and in the end they are telling me that its Crohn.s
I suffered a miscarriage back in January and ever since then things just wern't right. I went to see my doctor and first off he assumed that it was Acid Refux and sent me home with some meds to take care of that. When it did nothing for me I stopped the meds and ended up waiting longer and then I had dropped 15 pounds in 2 weeks and I was only 115 to begin with so it was a big loss for me. by this time it was Easter and I was having dinner with my family and they were all really worried about me because of the amount of pain that I was in and the way I looked. My skin was pale and my hair just wouldn't come clean. I looked like a mess. I was very lucky to have anamazing husband by my side and who would calm me down when I got worked up and depresssed over the pain and the way I was looking. At Easter dinner I had told my father about a bump that developed on my leg and he in turn told my mother who made me go into the Emergency room. upon my arrival there they took my stats and admitted me right away. gave me some Morphine for the pain and hooked me up to an IV as I was very badly dehydrated and malnourised as everything I ate would go right threw me within minutes.
They kept me in the hospital for a week and ran test and test on me and gave me a Colonospy.
They had me on Prenasone and have tryed to ween me off of it but the substitue they had for me wasn't enough which then sent me back into another flare up and back to square one back in the hospital. They put me back on the steroids and sent me home to wait for the specalist.
Now my specalist has advised that I start at Methrotrex injections once a week. The side effects sounds terrifying and im not looking forward to this.
I am wondering from some of you who have had this Disease for sometime now that if I will ever be able to without medications and what is a good sort of diet to attempt?
I am very lost with where to go with this and the doctors are not good at all with guidance.
Any help that anyone can suggest would be great.

Comments for New Crohn's

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New to Crohn's and a Starting Point.. NEW
by: Annette

I am so sorry to hear your story, you have suffered a great deal and unfortunately, many people with Crohn's disease have experienced similar bouts of ill-health.

It can be really confusing when you first become diagnosed but try to see it as a light at the end of the tunnel as once you know what you are dealing with; at least it takes some of the uncertainty away.

The first thing to realise is that Crohn's affects people differently. It's a chronic disease which means it is in for the duration and doesn't simply become cured. Fortunately, it can suddenly just ease up and you will experience bouts of time where you will feel Crohn's free.

If you are feeling overwhelmed by the amount of information coming your way, it's a good idea to take someone with you when you visit the doctor or hospital so that they can help you to remember all of the important bits. At the moment you are probably experiencing fear and anxiety which won't help your Crohn's by the way.

Although you may have been experiencing pain for some time, you may not have kept a journal noting the times when it was worse and whether it became worse after eating certain foods. It's a good idea to do this over the next few weeks and it will start to form a pattern for you, revealing possible triggers.

You will need to identify the foods that cause the problems and here is a list of food types that could cause potential problems for you individually:

butter, mayonnaise, margarine, oils
fizzy drinks
coffee, tea, chocolate
dairy products
fatty foods
foods high in fiber
gas-producing foods (lentils, beans, legumes, cabbage, broccoli, onions)
nuts and seeds
raw fruits
raw vegetables
red meat and pork
spicy foods
whole grains and bran

It's a long process to find out which ones may trigger a response but see how you go. Just remember you are doing something positive and you will find it gets easier.

By avoiding certain foods that affect you, it is likely that any symptoms of bloating and abdominal pain becomes much more manageable. Any cramping and diarrhea will ease too and you will feel a little bit more human.

If you smoke, it's a good idea to give it up as soon as possible and if you are feeling constantly fatigued, it's worth noting that sometimes, medicines prescribed can make you feel like this so discuss this with your doctor. Adopting a good sleep pattern is essential but if this is difficult, nap when you can and just rest giving your body a chance to recuperate.

I hope this gives you a good starting point and if anyone else has any tips, I'd love to hear from you.

Good luck.

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