waiting for my results...is it Crohn's?

by Belle
(Melb.Australia)

Hi there, my name is Belle,i am 24 years old, for the past 3 years or so, i have had alot of tests,test after test after test... the only answers i got was that i just have a case of IBS, i knew deep down that IBS couldnt be causing me these problems,there must have been something else...

you know that feeling where there's something just not right with the answer you get,well that was me...
i just feel miserable at times, in pain, tired,sometimes i get the feeling of blacking out, where you start feeling deaf and things start going dark and then it goes away..and the embarressment of my toilet problems and the mucous(i even feel uncomfortable saying that in the forum where you all know where im coming from)...i have good days and i have bad days,he bad days are awful for me...
what did i do wrong for me to get this way,im not a party animal, i enjoy a quiet glass of wine with friends at home, i try to eat healthy, i dont do drugs, i try to excercise when i can....i dont get it!
i wake up a skinny person (average size 10)and then go to bed a bloated fat person,i dont even want to see my body at night...
some days i just want to cry from the annoying pain, especially after eating or having some wine,i just want to curl up and go to sleep in hope that i wake up feeling better and if possible normal again...
i have had 4 attacks of uveitis since may 31st, and recent blood results have come up that i am a little iron deficient( even though i have had iron deficiencies since a teen)also a deficiency in b12,but also my ESR results were very high. so 2 years after my last load of test it was time to have another lot done, in hope that i finally get an answer in what they now believe is Crohns, i had a colonoscopy and gastroscopy 2 weeks ago... and i had the pill cam last tuesday , and i get my final results on the 19th of December....
i just want to know, so that i can start trying to do all i can to help myself, even just a little, so that i can start trying to be the person i was before this all happend to me...
did i mention i have a husband and a 6 year old son, i want to start being better for them too, so that when my husband asks how my day is, i dont have to say how my tummy hurt so bad or how i dont feel well, i want to be able to say"i had a great day and i feel fantastic".... i hate this! i hate feeling helpless at time, when i really am strong...
thank you for listening for my story,im glad i stumbled across others who might feel as i do..Belle.x

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Hang in There
by: Anonymous

Belle, I was just diagnosised with crohns, and I think the things you are feeling well we are all feeling, this is part of the whole crohns disease. I just want you to know you did nothing wrong to deserve this. None of us did, unfortunatley all of this I believe is due to the Food industry and crap they put in stuff we eat. But of course they say there is no diet that they have found to help, but I am starting to watch what I am eating and I am noticing that when I eat bread, or sweets I get bloated right away, where meat does not bother me as much. I have been looking at the Specific Carbohydrate diet and I am going to try it out, it makes since when you read it. It will be hard but I do nto want to live my life on the meds, the Entocort they origanally wanted me to take (with my Ins) 945.00 per month. WHAT ARE THEY THINKING. so right now on prednisone and going to take Humira when they can get me help with the costs. I do not want to take anything but realize I have to get better. I am not going to give into this disease but rather look at it as a reason to learn more about my body and help others. Adversity is to help us becoem strong and to find new oppurtunities in life. I am going to stucdy as much as I can, get healthy and help others do the same.

me too!
by: Anonymous

I started having problems last year, had loads of tests and i'm still waiting for a colonoscopy. The doctors all really think its crohns and i'm trying to manage it the best i can with diet. I completely understand how frustrating it is to be in pain every morning and being bloated. I work in a large building and its very embarassing when i go to the toilet. All i can say is that i've been reading up and its really helped me to know that there are so many others that feel the same, and that it IS managable. I'm getting married this year and i'm determined to manage it for my big day!

hello
by: Anonymous

I have been in the same boat as you.My daughter who is six has been suffering since she was three years and still no diagnosis it is a nightmare.She is going to great ormond street soon to swollow the capsule hopefully they will be able to give some answers. She feels awful most of the time and to see her suffer is terrible.So I know what you must be going through.Hope you be ok. x x

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