HUMIRA TAKING AGES TO KICK IN!!

by ASAD
(UK - MAIDENHEAD)

Hi


I have been on Azathioprine and prednisilone for 2 months - STILL HAD upset stomach.

I then went onto Humira injections 40mg 1 shot every 2 wks... been on this for 2 months - AGAIN bad stomach

now i'm back on prednisilone ( which causes weight gain ) and also back on 2 azathioprine and 1 HUMIRA INJECTION 40mg every 2 wks... dr wants me to do this for 6 wks and then see what happens - if again stomach is bad he'll go to 3 azathioprines...!!

he didn't want me to increase my humira - why? well too expensive he said....and he thinkt its not working..
although my blood levels have gone down...

did tell him well i have tried azathioprine + prednisilone for 2 months mate and nothing...but he reckons try it again but this time with the injections at same time..

feel i'm banging my head against brick wall - it does get me down..and basically i am disabled by this disease.. i can no longer go to cinemas - i never missed a film when at a cinema but recently i'd find myself running out to the toilet...due to chrons... also i can't go into town at lunch time in case of urgent need to go toilet...i can't even go into town wiht my girlfriend and send her to do shopping...

life's a killer!!....

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Humira and abdo pain


(England)

Ive been on humira for about 10 weeks now, i have felt rubbish since the day it started, headaches nausea chills constipation dizziness abdo pain and so on

my abdo pain just seems to be getting worse, i rang my ibd nurse she doesnt seem to think im sufferring with constipation anymore (if i am it is now mild) having looked at recent xray. The pain just seems to be getting worse and all the doctors want to do is reduce all my other meds to see if they are not causing the dizziness and pain etc but whilst doing this ive noticed my CRP tests are increasing every month and are already abnormal...

I know theres not much left after humira as theyve exhausted all options now except for surgery.
Has anyone else experienced anything like this, on humira or not.

I just want some form of relief

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Humira shots for Crohns Disease

by April Wooten
(Louisville,Kentucky)

My 9yr old neice was diagnosed with Crohn's Disease a few years ago.At times,she has had spells of passing blood.The doctors are now thinking of giving her Humira shots.My sister in law was told they can be painful.What are some of the side effects from the shot,and how does it help??

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Crohn's controlled with Humira

I was diagnosed with moderate to severe Crohns about 3 years ago. spent the first year in out of hospital trying different combinations of meds. all would work for period of time then id have problems again. Finally went to dr who suggested Remicaid or Humira. Chose Humira for convenience and havent had any problems for last 2 years. Give myself a small injection every 2 weeks. recently had checkups and no sign of inflamation. in complete remmition. So suggest considering humira instead of remicade.

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on Humira 6 months just developed itchy rash on inner arm

by Tony
(SC)

Anyone had this issue? Rash looks like a bunch of red dots.

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HUMIRA

by Karen
(Scotland)

Hi I've had Crohns Disease for 22 years but since giving birth 7 years ago has not been settled. I've been told humira is my only chance of not having surgery. I have been to the hospital 3 times for the injection now but have felt no difference, how long does it take til you see a difference?

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Humira

by Shawna
(Missouri)

Is anyone out there on Humira and if so how is it working for you?

Thanks,
Shawna

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Humira For Chrons?

by Lizzie
(Lancashire england)

Hi i am 31 years old and have had chrons for the pas 12 years, i have already had 2 majour bowel operations and after spending 3 months in hospital last summer the 2nd operation hasnt worked, i have now been told i may have to have whats left of my colon totaly removed and a colostomy.
I have been put on the humira programme but dont know what to do due to already having a very low imune system due to steriods i am currently on 40mg daily along with a cocktail of medication, i have high bp and fibromalgia along with malabsorbtion of liver bile salts, I Have constant pain and pass motions aroun 10-12 times a day, as you can imagine i am very drained but i manage to work and have 2 lovely children that keep me going but i would love to do more with them and am at the point of not knowing what to do next for the best?
The humira is a option but the side affects are quite serious does anyone have any comments for me?

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humira for crohn's disease

by Antoinette James
(Baltimore, MD)

my body and joints ache, have had 3 surgeries for crohn's and wear and ostomy. Now I am giving myself Humira shots, and my vision and joints are bothersome. How do I get some relief without my doctors prescribing me the pain medicine?? I feel like I'm losing all capabilities at times., It's hard to deal with getting out of bed, but I must work to pay and afford the bills for doctors and ostomy supplies. Is there any known cases of people getting Disability for this condition??
I am losing my teeth, strength in my legs and arms as well as my hands.

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Imuran or Humira for Crohns

by Kris
(Cleveland, Ohio )

Hi I am 22 years old and I've has Crohns for 5 years now. I've only ever web on Pentasa with some steroids when I am flaring. However they put me on Imuran two and a half weeks ago and I've been extremely Ill since. stomach pains, and nausea. I haven't vommitted but the pain and uncomfortableness is unbearable. I don't want to be sick on Christmas. I got married six months ago and I would very much like to spend my first Christmas with my husband healthy instead of in bed. My doctor told me to split up the dosage but it hasn't helped. I feel as though there is now sharp pains in my abdominal area. Almost like gas pain that I can't get rid of.

Is there a better alternative? Would humira be better and easier to take? I'm worried about cost but if I need it cost shouldn't be the reason not to get it. What are the side affects of humira? My doctor assured me that Imuran had no side affects other then the possibility of getting cancer. So obviously they lied and I would like to hear from everyone else what works from them.

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Humira

by ARNA
(Utah)

I am having alot of the side effects and would like to know what others on Humira are dealing with??
I have had seizures and other neurological problems before I was on Humira but it is making these problems really flare up!!

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prednisone vs. humira

by kris malak
(st. clair shores, MI)

I have recently been diagnosed with Crohn's Disease and am having difficulty getting it into remission. It's been 12 weeks since the onset with little relief from Colazal (9 tablets-6750 mg per day) Have scheduled an appointment with my specialist to discuss the use of Prednisone. Not looking forward to the side effects of steroids and hoping there is another option. Has anyone had much luck with Humira? Please advise.

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HUMIRA AND CHRONS DISEASE

by Zarah Alvie
(USA)

I am having a hard time getting information. I have Chron's disease and had sugery August 2nd 2011 for small intestine obstruction. 10 days post surgery I was back in surgery with a massive inflammation blockage. This is first time something like that has happened to me since I had 3 prior surgeries. The only difference is that I am taking Humira for past 5 months and was told not to take the injection before surgery. Now I cannot get straight answers from Dr's on how this inflammation formed so quickly after surgery. On doctor suspects that because I have not taken Humira injection for about a month that it might have played a role in this mystery, Has anyone had anything similar to this or have insight on success and failures from Humira and Remicade, I really appreciate any and all responses and insight.

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Humira for Crohn's Disease

by Irene Brace
(Canada)

My daughter started on Humira last week for Crohn's Disease ..She is also taking Imuran. She suffers from Seizures which was under control with Tegretol until she had a Grand Mal on Saturday June 5..2010. Can someone shed a light on this for me? Should she continue with Humira and have her Seizure Dosage increased? Or should she stop taking Humira completely? Any suggestions will be greatly appreciated.

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humira for crohn's disease

Have had three sections of bowel removed no relief Doctor tried all drugs and now has me on humira still no relief I have gained weight all around my abdominal region still sit on toilet at least 10 times a day and am only eating twice a day pain is unbearable has any one else experienced this??

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Please: need advice/reviews on Humira

by Shelly
(Australia)

Hi

My name is Shelly and i am 25. I was diagnosed with crohns 5 yrs ago. 5 months ago i had my worst flare up. The previous 5 years i never really had a serious flare up and was on salofalk tablets.

My doctor put me on Entorcort (which didnt really help me at all). I kept trying to ignore the pain and tried to continue with life as best as i could. Until 2 weeks ago when i ended up in hospital.

I was put on hydro-cortisone (if thats how u spell it?) and then predisilone. Neither of which helped improve my blood results. My CPR (inflammation marker went up to 165 and my MRI scan showed significant inflammation.

I am still in hospital and my doctor has put me on Humira. As i have been in hospital for over a week, i have been reading all about it on the internet and am extremely scared about the side effects of this drug. I am stressing so much that i am finding it hard to sleep and am constantly thinking that it can cause cancer.

My doctor said that it is my only option at the moment. I would have liked to get a 2nd opinion, but when you are in so much pain you just go with whatever is recommended i guess.

Anyway i was hoping to hear from anyone else that is on this drug? How are you feeling? What reactions have you had?

I had the first dose of injections 2 days ago and my blood results are better but the thought of injecting myself again with something that may cause cancer scares the living daylights out of me.

Please any information of feedback on this drug would be appreciated.

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Humira for Crohn's disease

by John
(Mesa, AZ)

My son was diagnosed with Crohn's disease last year. After a bowel resection in May, he has done quite well. He has been on Imuran (although a low dose of 50mg/day), it was stopped about 6 weeks ago to make sure it was not the cause of his anemia. His physician wants to try him on Humira. The only medication he is currently taking is an iron supplement.

Can anyone tell me about their experience with Humira?

Thanks,

John

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Why continue with Humria if Crohns is in remission

by Cecile
(long island NY)

My husband has severe Crohn's. He had his colon removed, went to the "Best" NY hospital, "Best" surgeon and had staph infection had to be hospitalized after the colon was removed, had to be on TPN,5 more surgeries later because when they removed colon, small intestine was not put back correctly. Had to have a graph on his abdomen.
He has been through hell and back. His joints are hurting him now. He has been off Humria for almost 1 year now because of all that has happened, and the gastro wants him back on. His Crohns is in remission, so why put him back on this heavy drug?

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Humaira for crhon's disease?

by Chantel
(long beach, ms)

I am 27 years old and I have crohns disease andhave been living with it for years now... I had my surgery in 2008 and I recently had a colonoscopy showing that it is back... now I have to take the humaira shots as prescribed by my doctor... how does this drug work? Is it worth taking? Any input will be greatly appreciated and taken into consideration... just need answers!

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Humira

by John Fierro
(Mesa AZ)

My son will be starting Humira shortly. He failed on Immuran (caused anemia) and our insurance company would not approve Remicade without trying Humira first.

Would anyone care to comment on their experience with Humira such as effectiveness, side effects etc. What is the longest you can be on Humira without it losing it's effectiveness?

Thanks,

John Fierro


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