Remicade, the miracle drug, has come to an end.

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Remicade, the miracle drug, has come to an end.

by Matthew Gross
(Knoxville, Tn)

I have currently been without Remicade since Nov.2010. I have health insurance through work but it would only cover $1500/ year. Yeah, so no thanks; that would mean about $17,000-$18,000/ year out of pocket. By the way, I work in a kitchen as a grill cook. I don't know what to do, and i'm afraid that i'm going to flare up, it is just a matter of when. I feel like i am in the middle of the ocean in a small boat without oars, and the seas are steadily rising. If anyone knows of any foundation, a new way of providing insurance, or known miracles, please contact me. I am not looking for a handout, just a decent chance.

Matthew Gross
email: grossed83 @ gmail.com

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Remicade, the miracle drug, has come to an end.

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Jun 28, 2011

Options...
by: Peter Bray

You look for what options where you can find them...put your son's malady into the search engine preceded by " alternative meds for" and see what there is on the planet---you become a 23 year lnog advocate for your child, you become a lay doctor...you learn what you can about biology and nutrition and every researcher on the planet...my wie's daughter had Fanconi's aplastic anemia as a toddler, was NOT suposed to make it---my wife became her advocate and gave her 35 more years until an aggressive cancer on top of the anemia and pseudomonas did her in at age 40--we have NOT been on the planet long enough to have all the answers...ewe have to push the envelope daily...doctors are NOT the only ones with brains and determination...join support groups and become a lay researcher for your son's needs...share with others what you know and have learned..there are others in your trail, knowing less than you---good luck, stay in touch, the world is round for a reason, what goes around, comes around...Peter Bray, Benicia, CA

Jun 27, 2011

loosing Insurance for Remacade
by: Anonymous

My son is in the same boat . He has lost his medicare for his remacede treatment and now we our at a loss .. Trying to find insurance the Childrens hospital will accept . Dont know very confusing .. His treatment was the 24 of June . H e did not recive it . he hasnt has a flare up for five yrs and he and nemocycstics Phemonia and the remacde did heal the 12 holes in his lungs so may not be good for some but my son has survived because of it .. What are we to do now in this state of arizona . Where do we turn?

May 23, 2011

Useless Remicade...
by: Peter Bray

Sorry...my daughter was on Remicade for 5 useless years...preceded by 18 years of other useless meds...she now has a temporary looped ileostomy following recto-vaginal fistula surgery and is on probiotics and aloe vera...see www.crohns.org and www.johnes.org and www.paratuberculosis.net and draw your own conclusions---also see the IBD videos on www.YouTube.com, join every support group on the planet and see what other people do to cope...e-mail me at PetrBray@AOL.com and I'll send you 9 columns I've written on the subject---

Western Pharmaceutical houses are NOT after a cure, they're after symptom suppression and drug sales while the pathogens run amuck---Peter Bray,Benicia, CA

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Remicade, the miracle drug, has come to an end.

Comments for Remicade, the miracle drug, has come to an end.

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Remicade, the miracle drug, has come to an end.