very common and not a good sign so watch carefully what does your gi say ? im still hav in problems after 4 yrs doc says its nerves (not likely).
Aug 09, 2008
Side Effects by: Anonymous
I have been on Remicade for 1.6 years and just had a allergic reaction on my skin. The say it is dermatitis. Very wierd. Hopefully it won't stick around.
Apr 16, 2008
fistula by: Anonymous
the one thing that remicade does for sure is heal the fistula . took me a yr but still hasnt come back . the side effects are horrible for me tho
Apr 16, 2008
Wife of Chrons patient by:
My husband had a seton placement and it did not work so the doctor started him on Remicade last August. He has had 6 treatments so far, and mentally he feels so much better. Unfortunately physically, his fistula is the same, not any better. Feel for all of you with side effects...
Apr 04, 2008
remicade by: Anonymous
some people have no problem with remicade . my side effects started while i was on it so i had to go off it . has been four yrs and still problems . dont want to scare you , just dont ignore your gut feelings . hope you are and stay well.
Apr 04, 2008
Remicade by: Davis
I was diagnosed with Chron's disease in 2005 and at the time had never even heard of Chron's. After an hemicoloctomy in 2005 and numerous blood tranfusions and hospital stays ( 2 to 3 yearly) not to mention the amazing amount of bouts of diarreah daily I started on the Remicade Therapy and have had a very good response to the treatment. I am no longer running for the bathroom every five minutes and have had no vomiting or dizzines from blood lost. It really scares me to hear about these side effects. How long before these side effects start after the treatment. I am schedule for my 3rd dose on 4/7/08. And would really like to hear from more people that have been on the therapy and if they are having similar problems.
Apr 02, 2008
it works for some and not others by: BARB
hi when l read your letter l relized that l have many of the same never put to the remicade. l went on it as a test subjet about 6 yrs ago. it worked greated cleared my fistulas and put me in remission then after 4 treaments l had to pay and then it was 10.000.. l slowely wwnt down hill. and then got the opportunity to try again. l get the blured vision, heart pains... thinking its not really working any more but afraid of not taking it.. l cant tell ya how long it takes to get out of your system.. but for me it beats prednsone thats stuff is real bad for me took for about 20 yrs of and on ..so lets cross are fingers that they come up with a new drug. they are getting smarter everyday.. Wish you all the luck, laughter, and good memeriors.. take care
