Remicade and severe joint pain ??????

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Remicade and severe joint pain ??????

by Rick
(Canada)

I have been on Remicade for about 6 months. It has been working very well. After my last treatment, I have been suffering from severe joint pain. Every joint in my body hurts. I couldn't move. The pain was from head to foot. I was hospitalized for a day and given a shot for pain. Many tests were done and they showed nothing. A couple days later and I am still having some pain. Dr says its a side effect of the Remicade? Has anyone else had this pain from the Remicade??? How long will the pain last???

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Remicade and severe joint pain ??????

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Sep 17, 2011

Correction to my previous post
by: Laura

Correction to my Sept. 7th post:

I recieve Benadryl and hydrocortizone, not methotrexate (oops) as pre-meds before my infusions.

Sep 17, 2011

I had the severe joint pain too
by: Anonymous

I experienced severe joint pain roughly a week after my first infusion. The pains were excruciating and moved around to different joints on different days. Many times I couldn't even walk because my knees, ankles or hips hurt so badly. I couldn't handle this pain so I never went in for a second infusion. The joint pain slowly dissipated over 6-8 weeks once the drug left my system. I opted for ostomy surgery instead (I have UC) and am extremely happy with the results. No more meds or pain.

Sep 08, 2011

Do a websearch...
by: Peter Bray

Do a websearch for "arthritis-like pain from Crohns"---it's a side-effect from crohns and prevalent all over the world--5 years of Remicade infusions were useless for my daughter--it's immuno-suppressive, it only suppresses the symptoms while the PATHOGENS continue to devour your bowels--go figure--work on "cures" and not "auto-immune fantasies" that western medicine is not interested in curing--they only want profits from their worthless drugs---23 years later and my daughter has an ileostomy, a looped, temporary one, but it's still an ileostomy---a waste bag glued to her abdomen which leaks...e-mail me and I'll send you the name of her enzyme wich corrected her arthritis-like joint pain--available by internet--become an Internet researcher and activist BEFORE you too need an ileostomy....PetrBray@ASOL.com

Sep 07, 2011

I can relate
by: Laura

Several months ago I had a similar reaction to the Remicade. I wasn't hospitalized, but I had SEVERE joint pain the day after the infusion. My jaw hurt so much I couldn't open my mouth. I was also told it was a reaction to the drug. The pain subsided after a few days.

I now have Benadryl and methotrexate as pre-meds before the Remicade and haven't had a reaction since.

Aug 06, 2011

Arthritis-like pain from Crohns
by: Anonymous

My daughter has taken an enzyme to eliminate arthritis-like pain from 23 years of Crohns, the last 5 years on useless Remicade--Work on a cure for Crohns, not worthless "immuno-suppressive" drugs that only mask the symptoms while the real pathogens continue to destroy your bowels--Study what the pathogen is in Crohns and follow it on the global Internet: MAP, mycobacterium avium paratuberculosis"--look it up yourself, become your own advocate, look what they are doing to eradicate it in England, Australia and Texas...don't be uselessly duped by BIG Pharma that it's a "auto-immune" disease--that's 1960's thinking! See Dr. William Chamberlin and others speaking at the 10th International Colloquium on Paratuberculosis in Minneapolis in 2009...it's all on the Internet...do a search---e-mail me and I'll send you the enzyme info, artritis-like pain is a symptom of Crohns...do a search, it's all on the Internet---PetrBray@AOL.com

Aug 06, 2011

Joint pain and fever
by: Anonymous

My mother has crohn's. Thought the abdominal pain has reduced she has fever and joint pain.

She has had fever forever after being diagnosed for crohns.

She complains a lot about fever. She feels if fever was not there there would be no joint pain and feels she could manage better.

Jun 12, 2011

5 years of Remicade useless...
by: Peter Bray

After 5 years of Remicade, my adult daughter Cathy, 43 found it to be useless...preceded by 18 years before that with sulphasalazine, Asacol, Prednisone steroids (with steroid psychosis and hospitalization more than once), and MP6...so now she has a looped, temporary ileostomy with stoma and external bag and continuing arthritis-like pains, which you may find are typical of Crohns...so do a websearch on the Internet for "Crohns and arthritis-like pains" and see what you too discover---Become your own activist and join as many Crohns support groups as you can and see what works or doesn't work for others---PetrBray@AOL.com

Benicia, CA

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Remicade and severe joint pain ??????

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Remicade and severe joint pain ??????