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Remicade and how long can you be on it?

by Sean
(Bayville, NJ)

I have been on Remicade for around 10 years now and though I am not having the flare ups like I did 10 years ago, I do notice I feel weaker and weaker as I get closer to the time to get my Infusion. I used to get them every 9-10 weeks, then 8 weeks, I am now on 7 and somewhere around 5-6 weeks I start feeling a general malaise. I am weak and achy all over.
Anyone else out there been on Remicade this long and how are you feeling? Any ideas on how long I can continue on this?
Thanks




Comments for
Remicade and how long can you be on it?

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Sep 15, 2011
 Remicade for over 10 years
by: betsy

Yes - I have been on Remicade for over 10 years without any reactions until my treatment last week. Now they are making me wait another 8 weeks to try it again with premedication. For the past couple of days my shoulders and hands have been really hurting. I don't know if my body aches is due to build up of antibodies to Remicade or just flare ups. Either way its not pleasant.
Sep 16, 2010
 Remicade
by: Vanessa

Hello
I think you are lucky to have lasted all these years on Remicade :) My system got used to it after 1 year. At the end of my Remicade treatment I was on Remicade every 5 weeks and afrer 2 or 3 weeks I would start fever, diarhoea... There are more treatments after Remicade like humira...
Good luck!

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