Side affects from Remicade Treatments

by Sally
(Milton NH)

I was just diagnosed with Crohns in the beginning of August of 2009. After a 15 day stay in the hospital, I went home with 7 meds for Crohns. I had a remicade treament in the hospital, with no side effects, well least I think none. I had my next remicade treatment Sept 1st, and my 3rd treatment Sept 30th.


It was the 3rd treament of Remicade that really went through my body, from head to toe that afternoon. By 9pm that night, it felt that there were a millon people in my body, tearing it apart. No one could even touch my skin. It was found out that any arthritis that I had in my body, (which is everywhere) was made 10 times more painful as a result of one of the side effects of Remicade. I also had a total knee replacement in March of this year, along with surgeries for a rotator cuff repair and a bicep muscle that had been ripped. Both of these surgeries, were severely affected by the 3rd treatmemt of Remicade, with the artritis flare up. Now they're more painful then they were before the surgeries. So we wait to see if I need more surgeries on my knee and shoulder.(cute)

So now no more Remicade treatments for me. At the end of November, I will start the Humira treatment.

I was at a Rumatologist yesterday, to see if I had Rumitoid (sp) Arthritis. Which I don't. which is the only good news I have had medically this whole year.

I have some questions, as far as other side affects that have been happening to me. They started right after the 2nd Remicade treatment. But according to info that i've read, which according to things that i've read are very rare, but would explain a lot.

I have lost mobility and funtion with my pinky, ring and middle fingers on both hands . They're always and yes I mean 24/7 tingly, with severe weakness. Along with numbness in my right foot, and my ankle, along with tingly and severe pain on the front of my right leg from the knee down. My leg feels heavy, and I can not flex my ankle as I could before.

With both of my hands and leg,foot, the more I attempt to use them, the worse they hurt and the heavier they feel. Items will drop out of my right hand. It gets to the point that I can just about lift my right foot. Which really isn't to good when I am driving. I can use my hands for driving with out a problem but they do start to hurt a lot more, andI can't start the car with my right hand, I have to reach over with my left hand.

I do have an appt with a spine/neck Dr a week from today to see if any of this is from pinched nerves. If he says no, then it is onto a Rumatologist.

I really would like some help, to see if any of this has happened to anyone during their Remicade treatments.

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remicade

by Tracy
(San Antonio Texas)

needs info on Remicade. Who is on it and are there any bad side effects?

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remicade question

I may be changing my medication from Sulsalazine to Remicade what do you think about that. Is Remicade a good choice to put my chrohn's in remission?

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remicade for fissures

does remicade deal with fissures?

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surgery verse remicade

My daughter is 15 and presently at childrens hospital and they r wanting her on remicade and my daughter is wanting to do surgery they explain the surgery as incisions put in her small intestine and that gives it room to expand

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Remicade and Flare ups?

by Rick
(Canada)

While on Remicade, can you still have flare ups? I have been on Remicade for abour 7 months. Everything seemed to be going great but the last few days, I have been having some troubles with many trips to the washroom again. Feeling like I have to go but can't or only a small movement? Always feeling like I have to go. I am on Remicade and wondering if these symptoms should still be happening?

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remicade & tatoos

My son is currently getting Remicade treatments and has been wanting to get a tatoo. Anyone have any insight on this? I know with chemotherapy for cancer, they ususally won't do it.
Also, the effects on your body with alcohol and Remicade.

Thanks for any input

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Remicade, the miracle drug, has come to an end.

by Matthew Gross
(Knoxville, Tn)

I have currently been without Remicade since Nov.2010. I have health insurance through work but it would only cover $1500/ year. Yeah, so no thanks; that would mean about $17,000-$18,000/ year out of pocket. By the way, I work in a kitchen as a grill cook. I don't know what to do, and i'm afraid that i'm going to flare up, it is just a matter of when. I feel like i am in the middle of the ocean in a small boat without oars, and the seas are steadily rising. If anyone knows of any foundation, a new way of providing insurance, or known miracles, please contact me. I am not looking for a handout, just a decent chance.

Matthew Gross
email: grossed83 @ gmail.com

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crohns disease and baby on remicade

by Tiffany
(vancouver)

I have crohns disease, ive been on remicade for two years id like to have a baby soon, is it ok to have a baby while on remicade or do i stop taking it??

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conceive on remicade

by Jessica Sanchez
(Greeley CO)

When on remicade is it harder to become pregnant?

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Remicade and severe joint pain ??????

by Rick
(Canada)

I have been on Remicade for about 6 months. It has been working very well. After my last treatment, I have been suffering from severe joint pain. Every joint in my body hurts. I couldn't move. The pain was from head to foot. I was hospitalized for a day and given a shot for pain. Many tests were done and they showed nothing. A couple days later and I am still having some pain. Dr says its a side effect of the Remicade? Has anyone else had this pain from the Remicade??? How long will the pain last???

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Remicade and antibiotics

by richard
(Clovis, Ca. USA)

My son, 26 yrs. old, has Crohns and is currently getting Remicade infusions. He has developed a nasty chest cold. We are afraid it will turn to pneumonia. He had asthma when he was small and had pneumonia several times at that time as well. Should he take antibiotics while taking Remicade? Does it cancel out the effects of Remicade? I know that upper respiratory infections are a side effect of Remicade. Even though they are side effects, how do you treat them? Lots of questions in this situation. All input will be welcome.

Thanks and God bless

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