remicade side effects?

by laura

has anyone else had side effects from remicade that lasted yrs after they were taken off it ?

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remicade vs humira

by Tod
(Long Island)

I am so angry with myself for fiddling with a perfect thing. Three weeks ago I started on Humira after having had a great 12 months (6 treatments ) on Remicade.
Like a dolt, i felt it would be more convenient to inject myself rather than once every two months get an infusion at the doctors office.
I now feel as bad as I felt before being on Remicade.
They just put me on Entocort to head off the flare up and they are going to put me back on Remicade.
Does anyone out there know how long I have to wait after my last Humira injection before I can do the Remicade infusion?

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Remicade Side Effects

by laura johnson
(LILLOOET BC)

I WENT ON REMICADE FOR 2 YRS . HAD TO GO OFF IT, BECAUSE OF HORRENDOUS SIDE EFFECTS . 1YR OF VISION LOSS FOR MINUTES AT A TIME , ONLY IN ONE EYE THANK GOSH. 4 YRS LATER AND IM STILL HAVIN PROBLEMS , NUMBNESS . FIBRAMYALGIA , BURNING UNDER THE SKIN.,, IRITIS , BLURRY VISION STILL. CHEST PAINS ( THE DOC THOUGHT I WAS HAVIN A HEART ATTACK . HAVE HAD EVERY TEST POSSIBLE . RIGHT NOW MY TONQUE AND THROAT ARE SWOLLEN AND I HAVE TO TAKE ANTI-HYSTIMINES . HAS ANY ONE ELSE HAD THESE PROBLEMS , ? DO THEY EVER LEAVE ?FOUR YRS IS A LOONG TIME . WOULD BE GRATEFUL FOR ANY FEEDBACK .

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REMICADE!?!?

by JamieT
(Davison, MI)

I am about to start remicade in about a week and was wondering if anyone had any tips, advice or other. I've heard so many things about it (mostly bad ) and I'm a little hesitant. Any input or other would be greatly appreciated!

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Remicade or Surgery

by Colleen
(Alberta)

55 year old female just diagnosed with Crohns in July after spending a week in hospital going through a battery of tests. Only symptoms were occasionally throwing up with bowel movement. I have a stricture in the large intestine. Was on Prednisone but GI did not feel that it had done enough. Now my options are surgery or Remicade. Comments from anyone?

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6mp or remicade, are there other options

by trish
(alamogordo nm)

i recently came out of the hospital due to another crohns flare up that went out of control. the doc has been trying to get me off pentasa and prednisone and onto 6mp for a while but i'm scared of the side effects. also a new doc is now talking about remicade being my next option but that seems worse than 6mp. which one is more successful or less risky or whatever... i'm scared of both. i take fish oil and coconut oil but i'm still in need of a new drug according to the docs. if anyone has tips or anything please let me know

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remicade

by lyndseylou
(England)

Has Remicade worked for you?

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remicade and crohns

by maryann
(new jersey)

Had remicade this morning. Now have shakes and chills, nausea. I don't know hwy this is happening. Any suggestions would be appreciated.

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can remicade make diarrhea worse?

by Karen
(New Jersey)

Hoping that remicade might help, it seems to help for a little while, then symptoms come back, sometimes diarrhea seems much worse.

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Remicade / Humira

by Frank
(Kentucky)

Recently my doctor suggested remicade, then switched to humira for treatment.
Although I have read up on these drugs I do not know anyone who has taken them.
Does anyone know how bad the side effects can be on these drugs, and do they make you feel better.

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Crohn's Disease and Remicade

by Alain
(Montreal, Canada)

Hi .. I'm new here, so first of all I wanna say hi to everybody ... I'm being treated with Remicade for 2 years now . and It's working well. I leave in Canada and will love to move back to the Caribbean in 5 years .. is there any substitute to remicade that I can take with me to the Caribbean ?? cause while being down there I can forget about remicade because it will be too expensive without insurance .. thanks in advance for the answer.

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remicade treatments outside of US

by Dennis Davis
(Houston, TX)

Do any countries offer remicade treatments tha would cost effective to visit (Costa Rica)

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remicade

by teresa
(b.c. canada)

why is remicade so darn costly?
i am waiting to go on it but because of all the darn paper work, it's taking much longer than i'd like.
We have to wait to see who will cover what, if anything. grRRRR
I am kinda nervous about the whole thing and i'd like to thank the internet for that. too much info out there it's like an over load.
any thoughts. will u stay on it? does it make you feel "normal" again? do u find you can eat better?
thanks
teresa

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Remicade infusions to treat Crohn's

by Herb
(California)

My name is Herb. I began Remicade treatments for my Crohn's before losing my group health insurance due to a job termination. Since I'm still presently unemployed and without health insurance, I've been searching for programs that will assist you with the cost of Remicade infusions.

Has anyone successfully identified any such support programs here in the US? I'm located in Southern California.

All comments are most appreciated!

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Remicade and how long can you be on it?

by Sean
(Bayville, NJ)

I have been on Remicade for around 10 years now and though I am not having the flare ups like I did 10 years ago, I do notice I feel weaker and weaker as I get closer to the time to get my Infusion. I used to get them every 9-10 weeks, then 8 weeks, I am now on 7 and somewhere around 5-6 weeks I start feeling a general malaise. I am weak and achy all over.
Anyone else out there been on Remicade this long and how are you feeling? Any ideas on how long I can continue on this?
Thanks

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medicine costs(remicade) for crohn's disease in australia

by con
(greece)

hi from greece...i'm con and i've diagnosed crohn disease since 2000...i' m working all this years except the first two months...my medicine is asacol(1*3) and remicade every 8 weeks...i'm planning to go to australia because i was born there and things in greece are going worst...my english are not good and the search i'm doing about medicare ext., is not helping me a lot...if anyone can tell me if remicade is covered by medicare, or how much does it costs for a person with crohn to have all the medicine...or any other information about benefits for people with crohn's...

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Remicade and being tired

I have been on Remicade for about 3 months now. It seems to working although I am still very tired all the time??? Is this happening to others? All I want to do is sleep or lay around. I don't have much get up and go. Very frustrating and I was normally quite active before being diagnosed with Crohns. Am I going to have to deal with being tired for the rest of my life???

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