I too have Crohn's and do know the moments of stomach pains and mouth sores. I know this sounds so silly but my doctor prescribes Magic Mouthwash and also includes in the formula Tetracycaline(sp) which helps a little sometimes. But if that is not available they tell me to get childrens Benadryl and swish around then spit or swallow which helps with sores in the mouth and the tongue. My tongue cracks really bad til it bleeds sometimes- sometimes a b12 shot helps to. When my belching was at it's worse the doctor prescribe me Flagyl which seemed to help after about 10 days on it. I had a narrowing for years. I was diagnosed at age of 19yrs and now I'm 45 yrs. I was able to put off surgery till this year. I still have to have the pyloric area dilitated which helps that area. I had a foot and a half of colon removed just in January. What medicines are you on?
Apr 02, 2008
been around the block by: barb
As we all do l suffer along with you. all of what you said is part of the illness. it seems no 2 people are the same some stay skinny some gain. l was on prednisone for 20 oodd year some years solid matience 1 a day ect now years later, l cant take it as my joints seize up like there sprained.. Lucky for me l went on remicade 4 yrs ago it was great. my 3 fistulas went away they said the vaginal one wil never.. life was good. toleralble. but back then l was a test subject so after 4 treaments the canada government said now you have to pay 12,000. so l crashed..... the 30 extra lbs l carried around fell off quickly and so on.. now 4yrs later the meds are still 3000.00 a treament but since l left my husband .. lm low income so its paid for but this time is not the same the fistula never went away. But energy and pain were much better. if you get the chance to go on remicade. make sure no interuptions. lve have this since l was 16 lm 45now and just try to take each day as a gift l have two lovely kid that keep me going just live life to the best you can peace and harmony are key. as with what the docs say they keep coming up with new things all the time.. good luck and well being
