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Never-ending Crohns

by Sheila
(Indiana)

I was diagnosed with Crohn's disease last November. I have had many different treatments, even developed pancreatitis from one of the medications. Recently I had my gallbladder taken out. I am currently on Humira and for a couple of days I felt really good. Now I am back to the same old, same old. Exhausted all the time, pain in my back, feeling sick after eating. It just seems to never end. Everytime I get a little hope, I start feeling crappy again. I have never had anything that knocked my feet out from under me like this disease has. I am rarely working and have even filed for disability because I just can't seem to work in any consistent manner anymore. I am not use to that. I am a person that has always worked, and I am constantly on the go. Since I got this disease, I don't feel like doing anything! Anyone have any advise for me?




Comments for
Never-ending Crohns

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Jan 04, 2012
 Medication that gave me pancreatitis NEW
by: Anonymous

Yes the drug was azathioprine.
Jan 04, 2012
 Pancreatitis NEW
by: Anonymous

I was just wondering what medication you were on that caused you pancreatitis? I'm on azathroprine and I know one of the side effects is pancreatitis and lately my pain has been so bad I can't help but wonder if I've gotten that. I highly doubt it, but just wondering how you knew it was different than crohns and what your symptoms were, ect.
Jul 18, 2011
 I feel your pain--literally!
by: Anonymous

Your story sounds exactly like mine: as far as the meds your on and the symptoms. The worst part is def the lifestyle change. I too am in and out of work all the time and hate the strain my disease puts on the other people in my life. The second worst part is the weird side affects of the disease (or maybe it's the medications?) but they are really scary and this has caused some sever panic attacks which I never had before either. At first, I thought I was having a heart attack or something but it turns out it was anxiety from all the pain and symptoms I'm getting from the Crohns: back pain, joint pain, muscle pain, head aches, chest and rib pain, exhaustion, nausea, depression, anxiety, constant colds and "stuffy" nose, abdominal pain, cramping, either being constipated or going all the time, bloated and gassy..the list goes on! I feel your pain (literally). I'm not sure how much longer I will be able to work with this disease, if things continue this way. What's strange is both my doctors assured me that people with Crohns can have a normal life once treated properly...ok, when?
Apr 21, 2011
 Response to Brenda
by: Sheila

Brenda,

Thank you so much for your comments. It is so nice to know that I am not alone. I am so sorry things have been so rough for you. I was wondering, you did not mention your age, do you think age has anything to do with this disease? I am 45 year old. The future does make me nervous. As I mentioned I recently started Humira. I have already had a sinus and ear infection, loss of hearing, and now I have to see a dermatologist tomorrow for a mole that has changed considerably. Sometime I think if Crohn's doesn't kill me the side effects of all these drugs will!
Apr 20, 2011
 TIRED
by: Anonymous

I'm right there with ya! I've had it for 15 years and can't really complain. I started getting sick again about a year and a half ago. Turned out to be an obstruction. Hospitalized with meds then started Humira. It worked for a few months and then another obstruction. Just had resection about 6 weeks ago. Started back on the Humira last week. I'm absolutely exhausted and my body just hurts. My joints feel like they are about to fall apart. I know how you're feeling and its awful. If you'd like to email me feel free..
png21@sbcglobal.net

Brenda from Illinois

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