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never know what to say

by emilia
(michigan)

my boyfriend has had chrons disease since before i might him. he hasn't had any serious gf's besides me. one of his "girlfriends" left him after a week BECAUSE of his disease. he was really embarrassed at first. but its been a little over 11 months now and he is comfortable with telling me, but i never know what to say when he tells me:
"i can't move"
"it hurts"
"i took my meds, but i cant take extra"
help please???




Comments for
never know what to say

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Aug 10, 2011
 Not much you can say
by: Nikki

Hi sweetheart.

my name is nikki and i have crohn's disease and although my current boyfriend is my bestfriend of 3 years. we have only just got together since i have been diagnosed.

he can only be there for me when i cant move wrap me up in a quilt and comfort me. wipe my tears away and listen to me scream. i cant imagine what he goes through. please dont let this affect your feelings for him. its hard i can say that we have our days where im a mess and he can not stand to watch me in pain. but he hugs me cuddles me in his arms and lets me know he is there and then asks me if there is anything i want or he can do. sometimes if its cramps in my stomach him just rubbing my stomach helps a little but a little is better than nothing in both our eyes.

i cant tell you what to say or understand what you feel but i can say we get hurt thinking that you sit there and are so helpless.


ox nikki
May 06, 2011
 what to say?
by: Anonymous

I know how it is. My wife and son have Crohns and it's hard and you feel helpless, because theres nothing you can do, but console them. When my wife says she's hurting or can't move I just say, "oh my honey' or something like that, just to let them know you're there and and ask them if you can get them anything to mkae them more confortable. It's hard, but if you stay together, you'll learn. We've been together for almost 30 years, she's had Crohn's for about 25 years, so, it's a tough road, really tough, but I wouldn'rt be with anyone else.

Good luck and God bless

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