my son has chrones disease

by Angie
(Ridgely,Tn)

We found out my son was sick when he was 7 years old took him to hospitals in memphis and nashville just for children. He was passing large amounts of blood and cramping so bad. They did a few test said he might have colitis but wasnt sure. He went into remission for a few years. Now he is 13 years old it has come back worse than ever he has been treated by a great dr in dyersburg that wouldnt stop til he got to the bottom of it test after test he found out that he has chrones disease. He is taking Pentasq 3000 mg a day has been on it for almost two weeks and its not helping he is hurting all the time and the blood has gotten worse again everytime he goes to the bathroom. Guess we will be back at the dr . worried parent/child just dont know what to do to stop the hurting.

I just dont know what to do as a parent.

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Stick in there
by: Janine

Hi Angie
my son was 8 when he was diagnosed with crohns. He is now 11 and hasn't as yet been taken off medication at all. He was on methotrexate for over a year which controlled his crohns remarkably. He was back to my boy with no signs, however unfortunately the medication was effecting his liver so was taken off it immediately. We are now trying immuran and steroids, not working great. He is missing quite alot of school because he is feeling nausea in the morning and lethargic at times. Our final drug us inflixomab, lm looking into at present. As a parent l am a very positive person who tries to keep him positive too. Always listening and encouraging him works for me and at times l push a little so he passes that negative feeling. Hope this helps

Stick in there
by: Janine

Hi Angie
my son was 8 when he was diagnosed with crohns. He is now 11 and hasn't as yet been taken off medication at all. He was on methotrexate for over a year which controlled his crohns remarkably. He was back to my boy with no signs, however unfortunately the medication was effecting his liver so was taken off it immediately. We are now trying immuran and steroids, not working great. He is missing quite alot of school because he is feeling nausea in the morning and lethargic at times. Our final drug us inflixomab, lm looking into at present. As a parent l am a very positive person who tries to keep him positive too. Always listening and encouraging him works for me and at times l push a little so he passes that negative feeling. Hope this helps

CD
by: Vanessa

I am sorry your son and your family are going through this. Your son is very young and I am sure he one brave young boy. The important things to do is call the doctor whenever something is worrying you... Never say "we will wait if it will calm down" The disease never calm down and it always get worst. That is why it is important to treat it right away. I am 30 years and have CD since I am 17 and I am leading a normal life. I accepted that my life is a roller coaster. It is never easy but tell your son that he will get better again... As a parent I think all you can do is talk it with him and be there when he wants to talk... sometimes it is good just to have someone to listen. And always ALWAYS be positive... If he sees that you are positive that he will get better soon, he will believe too and it will be easier to go through the flare up :).

Good luck :)
Vanessa

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