Missing work because of Crohn's flareup.

by Kathleen
(Victoria, BC Canada)

I'm wondering how to deal with this. I've missed a lot of work in the last 5 months due to Chron's related flare ups. I've heard that there are some who can't work at all and wondered if I'm facing this possibility?


I've worked most of my life since I was 16,(I'm 47 now) put in lots of overtime when needed and never complained. But now I'm not sure what to do.

I've had my own business in the past and wondered if I should think about quitting my job and working from home?

I know nobody can tell me what to do, just wondered if anyone else has experienced the same thing and if there are any programs available for Crohn's survivors to pursue working from home?

I live in British Columbia, Canada so if anyone knows of any programs offered here I would appreciate the help!

Comments for Missing work because of Crohn's flareup.

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Work and Crohn's NEW
by: Annette

Hello there,
I am sorry to hear that you are struggling with Crohn's disease and that it is affecting your work. As you know, Crohn's disease can be all-consuming especially when flare-ups occur and many sufferers find it difficult to sustain their work-load and in some circumstances, even to keep their jobs.

It helps if you have an understanding employer and one that you feel able to confide in. Many sufferers tell me that they find it embarrassing to have to explain the nasty side-effects of Crohn's let alone have to try to continue to work when they feel so fatigued.

Sometimes the hardest thing is talking about it but with that can come a sense of relief. Perhaps you will be able to work at home some of the time and go into work on those days when you feel fine? Potentially you can make it worse by worrying about how you are going to be at work. If you have a particularly stressful job, it can be an idea to work out how to cope with your reaction to stressful environments. This is not going to cure the disease of course but it can reduce the stressful triggers which can cause flare-ups.

In the UK alone, about one in ten people who have had the disease for over five years are unable to work, so from these figures you can see that you are not alone in struggling.

If you can work from home, you can certainly take the pressure off of yourself and adapt your working hours to how you feel - one day at a time. It can be harder to self-motivate however if you are used to be around others in your work environment but at least you won't have to worry about trying to hide how you are feeling.

Some people consider re-training so that they can still work but can have hours that suit them more and other sufferers are able to carry on. Remember that Crohn's is an individual disease in how it can impact you. Flare-ups can also become few and far between giving you a degree of normality so there may be months or even years where your symptoms fade and you can carry on working, but it is always wise to be prepared for those times when you cannot.

Worrying about it can certainly make it worse but once you have made a decision, you will feel better and can plan how you are best going to be able to cope.

If anyone has any tips for working with Crohn's, please do comment, I would love to hear from you.

working
by: Anonymous

Hi
i really believe most people understand if you are unwell and give you space to do your thing. Your biggest critic is yourself. i think the disease brings you gifts and depth in your personality which can be an asset in most work places.
cheers
mb

I understand
by: Nikki

Hi sweetheart,

my name is nikki. im 22. and i had to quit cheffing because i was diagnosed with crohn's disease. I cant say i like being at home because you get depressed. but physically i cant work the hours i need to atm. so im looking at studying courses to occupy my mind. and get out of the house. i would advice you to get part time at the work place and part time at home if possible. just so you are not always at home doing the same thing day in day out.

good luck and keep in touch

always Nikki

Missing work...
by: Peter Bray

My daughter Cathy, 43 has been on disability with Crohns for 23 years in California, survives on Social Security Insurance---hardly enough to get by but she's wise as an economizer---Recently had surgery for a recto-vaginal fistula and now has a temporary, looped ileostomy and an external waste bag on her hip, hoping with probiotics and aloe vera her colon will heal...we've tried all other useless western meds in 23 years to no avail--I'm reading a new book by a Crohns survivor, Cliff Kaliibjian, "Straight from the Gut: Living with Crohns & Ulcerative Colitis" you can get it new or used, paperback from Amazon.com, $23 new, less if used...

E-mail me at PetrBray@AOL.com and I'll send you my free 9 columns on my 23 years experience as an advocate and medical historian and lay researcher for my daughter--Good luck---it's a nasty disease but others are working at solutions in New Jersey, AU, England, Oregon, AU, etc--you have to be your own advocate and research on the Internet and with suppirt groups--pb

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