my question is: anyone have crohns terrible enough to go on medical disability. every time you try to get back to "normal" activities, you get sick again?
Firstly I hate using that word.....
I struggled for 12 months working long hours with my Crohns I was quite frankly a miserable git at home and used all my energy hiding my disease at work just so i could be sucessful at my job, 3 months ago i decided i was being unfair on the people that mattered most and resigned from my job, currently i am in the process of applying for a disability support pension and doing some freelance video work, I'm still tired, I still have my symptoms but I'm coping a hell of a lot better
May 18, 2010
missing work a lot by: Sam
I am 31 and have worked in the same palce for 9 years. I have always put in overtime when asked. Althought the Doctors are still testing for crohns I must agree with all of you about work places and how they do not understand. I got sick back in july of 2009. After gallbladder sugery and many ohter test they now feel it is crohns. My work place does not understand how much pain I am in and how tired I am. They keep pushing. I was thankful when the companie got slow I was just able to take two weeks off lack of work. I don't get much FMLA time and I have already used some up so I am hesitent to ask for more just in case I need any more surgerys. I do not see what people who ahve illnesses are to do. It would be nice if more compasion could be shown.
Mar 16, 2009
disability by: Anonymous
The problem with disability is it eventually runs out.I had to have a total colectomy and have had multiple blood clots and PE's in my lung.I applied for long term in August and went back to work finally in DEC but still haven't gotten a final decision from them.I can't have my next 2 surgeries to create a JPOUCH until I save enough money again and requalify for disability.It is a viscous cycle and unfortunately alot of people abuse the system and make it harder for people like us.
Mar 14, 2009
dissability by: Cindy
I am receiving dissability. I didn't have any problem getting it. I wasn't diagnosed with crohns yet, but I had 2 resections from blockages. Talk to your doctor, let him know you can't work and get yourself healthy at the same time.
Feb 11, 2009
fmla at your job! by: Anonymous
ive had crohns for 2 yrs. and i have fmla though my employer it has saved my job!! ask your human resources personal about it trust me it has been a God send
Dec 13, 2008
Understand by: Lisa
I am scared that I am going to lose my job.
Sep 11, 2008
work by: Anonymous
Take care of yourself first.I posted April 2008 and since then have had my colon removed and was in the hospital over 50 days total this summer.I have a temp ileostomy and 2 more surgeries to go.My work kept pushing me even though I was sick.I understand how you feel.My disability ran out and I can't work this year.It is really hard financially.Just try to take care Laura
Sep 11, 2008
lots of missed work by: Andrea
Yes, I've been on medical leave twice this year. Once for two months, the other time for 10 days after a stay in the hospital. I applied for short-term disability and bugged them for months, but they never responded. I cannot believe I got turned down, isn't that ridiculous? Anyhow, I switched jobs in the same company last year due to excessive stress and unhealthy environment, but I've still struggled to work. I think I have only worked 2-3 five day weeks in the last two years!!! I've asked several times to go part-time, but the answer has been no. I really just want to stay home and get it together. When I was off for 2 months that was the best I felt because I could actually take care of myself.
Apr 24, 2008
missed work by: Anonymous
Yes I am an occupational therapist out for the third time on disability this year due to flareups.I was just replaced @ my job because they said I was not reliable.It gets embarrasing because you have to constantly explain what is wrong with you and people don't seem to understand.I am tired of being Laura the girl that is sick all the time.I really miss work.I understand how you feel.Every time I feel better something else sneaks up on me.I hope you feel better soon Laura
Apr 23, 2008
Missed Work Due To Crohn's by: JoAnne
Yes, I lose my job because I had doctors appointments and flair ups and hospital stays, surg. I have been fighting SS disability for 3 years I have my hearing in May 2008 with my attorney. They say there is no way I want win my case. I have years of skills and education, but no one will hire me due to health. I hope this helps, but it is a long road with SS disability.
