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Help...looking for alternative medicines

by radhdmom
(Independence, WI)

Hello everyone. I have had Crohn's since 1995, then went into remission for 6yrs and then flared-up for the last 9yrs. I have had one surgery in 1995, I have been on every medicine you can name. The only relief I get is when I am on Methotrexate and Cimzia. I can't handle 6 shots per month and that is what I have to do when on these meds. Immuran sent me into bone marrow deficiency, allergic to Remicaid, Humara caused such muscle pain I couldn't lift my arms, prednisone actually makes me loose weight because I am so skidish, and now the 6 shots a month. I have already lost roughly 30 lbs since May and was wondering if anyone has tried any other treatments before I consider surgery again. If I have surgery it would be a colostomy bag.




Comments for
Help...looking for alternative medicines

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Dec 04, 2010
 Let me try
by: Anonymous

Im not a doctor nor a salesman just someone with crohns and alot of years in researching it. The problem with crohns is that its different for everyone so there cant be one solution for everyone. I kind of figured mine and would like to help you figure out yours. Contact me at EMAIL INCORRECT. PLEASE RESUBMIT.
Dec 02, 2010
 I've tried them all
by: Anonymous

I have been diagnosed since 2003 and I am 36 yrs old. I hve tried all the medications too. I am currently on Tysabri. I hve had 2 infusions so far and I am having some improvements. I was able to stop taking the Prednisone. The potential illness from this med is a little scary, but I couldn't take the pain I was in any more and keep up with my kids 4 and 1. Hope this helps...
Nov 12, 2010
 Help...looking for alternative medicines
by: Shawna

How are you feeling on Cimzia? I was on Humira for a year, then had a bad allergic reaction, but I felt great on it. Now I have been on Cimzia for almost 2 years.
Nov 10, 2010
 vanmtl1980@yahoo.ca
by: Vanessa

Hello
I have the CD since I am 17. I am now 30. I was sick for the last 6 years, I used to be on prednisone 3/4 of the year, I was 2 years on Remicade and it did not work. I was suffering like crazy, I had a stenosis in my colon. I did not want to get a surgery so I waited, waited, and waited and one day I got a perforation and I had to get a surgery. I have an ileostomy and trust me, I have never been so happy in my life. I can eat almost what I want, and trust me I still wear my skinny jeans and it does not show. The only thing that changed it before, I used to sleep on my stomach and now I sleep on my back.
If you have any questions, feel free to ask :)

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