i also stopped remicade,too many unknown side effects,
vomiting is a bad sign ,for me a bowel resection surgery made me a new man ,no pain,no constipation or diarria,,no cramps, thats what i would suggest depending on your situation,,,
it wont last forever but, i take pentasa, and imuran ,and prednisone if i have a flare up.
Dan
danhenry@embarqmail.com
Mar 28, 2008
Oh Mandy.. by: Roger
I know your goin' through more than hell sweetie..just hang there and only be with folks who truely love ya and care for ya! I guess everyone's got stress these days..but levels differ I do agree.Sometimes its good to try get to know the levels of anxiety millions of people go through..for that ya either gotta know it as a fact by understanding how this real world works and why people are more stressed in 2008 than even ten years ago...or..someone's just gotta enlighten you or ya gotta do research to know.Pain can be of many sorts..some are ill..some are depressed to a chronic point,others gotta walk on certain steps by compulsion and keep repeating it many hours a day,thats suffering too.I'm not sayin' to know reality is gonna cure your problem,it just makes ya aware your not the only one among thousands...its millions,its everywhere!Most folks who suffer chronic stress don't show they are,only 'cause in the real world ya get more attention if you're happy and successful..only because that person[s] who lets say admires that quality, is himself not happy..so an unconscious admiration sets in. Maybe thats human nature or just a resulted thinking after experiencing life with our circumstances.Its useful to know these facts and move on..just sayin'.."its my only life,so what the heck,I'l just take each day at a time"...then ya can start planning on those hours in that day...even if forty percent of the day is with contentment,its good enough.Just remind yourself there are millions probably suffering even more than ya...and millions more to your level.I'm a belever your mind is different to your brain..if ya wanna beat a bad feeling,its in your hands...the best person to help mood creativity is yourself..others can only help to think along.A new frame of mind has to be developed with a new approach,instead of self pity.Scientists are developing new cures each year for other illnesses,who knows they just may find somethin'for this one,who knows..uh huh?!Maybe they go deep into its etiology..
Another way of help is through forms like this when people speak of the similar issues ya got. To meet some with more or less your same medical condition..talking about it with them can make ya feel so much better.I really suggest ya make some friend[s] this way..you'l already feel better.
...and they'l be lucky too to be ya friend,not just because of this issue,,,its becoming friends with Amanda...just the Sweetest,Cutest..most Adorable gal in this whole wide world...Hell Yes!!
Mar 14, 2008
To Diana for comment posted 3/13 by: Amanda
Hi Diana,
Thank you for your comment. We have excellent insurance, so we are ok there. I am scared because I hear all the bad things about the Remicade. I am sorry about your situation. Feel free to email me, I'd like to hear more about yoru story. Trashyflamingo27@aol.com. Stay strong honey.
Mar 13, 2008
Remicade: The wonder drug by: Diana
I have to tell you, I get Remicade treatments. I feel like a brand new person in about 2 weeks. I have suffered with Crohn's disease for 18 years and it comes and goes. Mostly, I hurt, vomit, bloody diarrhea, etc, etc. I tried everything else. Mine got to the point that I had anal fistulas and surgeries for that. My docs all wanted to do a colostomy. Thank God, my MD tried Remicade. My only problem is that I take it about every 4 months and now have no insurance. I originally got assistance through Centocor (who makes Remicade), but now we make too much money and have no insurance. The price of the med alone is about $18,000 for one treatment. Hopefully, you have good insurance.
Mar 13, 2008
remicade by: Anonymous
remicade has many many side effects . ive went off it when i lost my eyesight for 20-30- minutes at a time . been off it 4 yrs still haviv major problems . scary
