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has anyone had a complete colectomy with ileostomy for untreatable CD?

by Wendy
(NH)

has anyone had a complete colectomy with ileostomy for untreatable CD?

I have been on every medication avialable in the US and I have two abcesses, a fistula and a colostomy right now, on june 5, i am scheduled for a complete colectomy with ileostomy, they claim that I will be pain free from this disease in my stomach if i have this surgery? that seems impossible, I have joint pain, mouth ulcers, iritis, erythema nodusum, you name it I have it, my back and spine are affected, everything, how am I gonna feel better> anyone been through it>? can you tell me your experience?
thanks
wendy

Comments for
has anyone had a complete colectomy with ileostomy for untreatable CD?

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Dec 14, 2009
 wendy
by: Anonymous

yes i had the surgery when iwas 33 im now 50 it doesnt really solve your problems you will always have them just not as severe and i hope you have a understanding mate because a lot of people dont its gets very lonely out there those are the things they dont tell you when your discuusing having the procedure done if i had to do it over again i wouldnt i sorry if this was not the answer you were looking for but once its done theres no going back
Sep 20, 2009
 indeterminent colitis
by: Anonymous

my 10 year old grandaughter had a sub total colectomy in April she has been managing her ileostomy fine and felt well until three days ago. She had no output from her ileostomy she was continuously vomiting and now is in hospital with a tube in her stoma NG tube morphine drip has had several tests including /ct with contrast and now the doctors think she has CD
May 29, 2009
 Crohns
by: Anonymous

Dear Wendy,

The info that i have read is that CD can show up anywhere from the mouth to the anus, anywhere in the gastro intestinal tract so I dont know if you would be rid of the disease completely. If it was me I would exhaust all avenues natural and medical and dietetic and get more than one opinion before any more operations. (You may have done this already).

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