Grieving After Crohn's Surgery
I am a 32 year old female Australian who has just been diagnosed with Crohn's after an emergency ambulance trip, urgent blood transfustion and midnight emergency surgery on my ruptured bowel.
I guess I am feeling quite angry/frustrated because I have been trying to seek medical attention for what I believed was a serious bowel condition for over 4 years but nobody would refer me to a Gastro as they just wrote it off as IBS.
So it got to the point where I took my first ambulance trip in January this year, and my 5th just this month in December, when they discovered that, even though they had recently done blood tests which had come up bad, I needed an immediately blood transfusion as my organs were shutting down.
An x-ray immediately thereafter indicated a ruptored large bowel so surgeons were called in for emergency surgery at 2am on Sun 4 December.
Surgery went well and I now have a temporary (but they won't guarantee that) Ileostomy.
Four days later pathology results showed I have Crohn's.
Generally I have tried to stay positive as I always am and feel at least it's a push for a healthier lifestyle and after 4 years of Chronic pain at least I have an answer and can receive proper treatment.
I guess I just feel angry that things had to go this far when I was already having CHRONIC symptoms for years.
Also I have beeen feeling very alone as even the most supportive family members just don't seem to understand what I am
going through. Ie I am only out of hospital by a few days and still in chronic pain from the surgery and complications and I have family members offering to drop off plants so I can start a veggie patch so I 'have something to do'! And another family member wanting to come up and put the Christmas tree up together when they are aware that I am under strict orders to have plenty of rest and nap twice a day until the surgery pain and complications have healed a bit better.
Then my partner on a few hours of an afternoon I had designated to rest due to chronic pain asking if I could just put on and hang out 4 loads of washing quickly first. (I am not meant to be bending down to the floor based front loader or hanging clothes, lifting washing baskets etc).
Then I hear him saying on the phone jokingly that I have been told to take it easy and am not listening to anyone! Arrrrgh!
I know they mean well and have been fantastic but at the end of the day it just feels like they don't really understand as they cannot feel the pain and the emotional impact of what I am experiencing.
There is a support group nearby that I will definitely join asap but being just before Christmas I thought a chat forum might be a good idea in the meantime.
Thank you for listening - well reading - and I look forward to any advice that can be offered.