First Really Major Episode of Crohn's

by Michael
(Brooklyn)

I've had Crohn's for more than 20 years, but always managed to keep it under control. No sudden urges to run to the men's room. No dramatic weight loss. No surgeries. I was careful with my diet, took my medications regularly and visited the doctor when I was supposed to do so. I had the occasional blockage and sick day, but that was it. In short, I was lucky. All of that has now changed and I'm looking for advice from those who have emerged from the more serious complications of Crohn's.

At present, I am flat on my back, medicated with Prednisone, Flagyl, Cipro and Pentasa. I have a severe stricture adjacent to my terminal ileum. I have waves of nausea. I throw up at least once a day and can't eat. I have diarrhea several times a day. I've lost more than 20 pounds and no longer have clothes that fit me. (I was 157 pounds to start with which, at 5'9," was thin. Now, I'm a scarecrow.) I've missed three weeks of work and show no signs of improving. I have been to the doctor several times, but I am told that the next step is the hospital which is more scary than anything else.

Does anyone have any advice for me? For the first time in my life, I have no idea what to do next?

-Michael