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Feeling Tired All The Time

by kim
(millington, tn. usa)

Lately I feel tired all the time. I was diagnosed about a year ago with Crohns of the ileum. I have pills for everything but some days those pills aren't any help. Some days if I eat certain foods I have no problems, other days those same foods can really send me into the bathroom all day. I have realized though there are certain foods I definitely can't have like vinegar and lettuce or alot of milk at once. I have read so much till I'm blue in the face! Everyone out there thinks they have all the answers it seems. I'm tired today of the whole battle!! I really need a friend who understands. I feel very alone.




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Feeling Tired All The Time

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Jul 14, 2010
B-12 if ileum is gone
by: john

Hi,

I am a very young 50 years old. I have had Crohn's since 13. I believe that you should be shooting B-12 twice a month is your Ileum is gone. I had three resections 1973, 1988, 2005 with 10 feet of small intestine gone. Three years ago I went holistic, no doctor. Read "Patient Heal Thyself". My silver bullet is probiotics (Primal Defense and Kifer). Mentally you need to learn to release stress. Maybe meditation and or yoga. Patient Heal Thyself will teach you to get of sugar (simple sugar) and eat properly. We carry three pounds of good bacteria, which is adversely altered by Crohn's. I cultivate my own Kefir, it is very easy. I am not suggesting that you stop seeing your doctor, but I feel better than I have ever since I was 13 years old. I learn about all of this from the internet and Patient Heal Thyself. Fell free to contact me is you wish at john_mb_florida@hotmail.com.

Good Luck and God Bless.
John

Apr 29, 2010
get out from tiredness!
by: Anonymous

Dear Kim,
Iam Also chrons sufferer in India.Take plenty of drinks example coconut water,fruit juices without sugar.This will give you more energy than the food that you take.
Good luck!

Apr 10, 2010
feeling tired
by: cimiziagirl

Hi

I agree with michelle. I'm 31 years old and was diagnoised when i was 21. I've been on every treatment. i've had two colon resections. it's hard but those bad days make me appreciate my good days a whole lot more. Somedays i'm full of energy and at other times i can sleep for days straight. crohn's can and will run your life if you let it. reaching out for support is good. Educating your self helps their are some good cookbooks out for crohn's. over time you learn how to work with the disease instead of against it. what works for some people might not work for you. when it comes to food or treatment. you need to find what works for you. if you every wanna chat you can email me citygirl259@aol.com
best of luck

Mar 16, 2010
Hang in there:)
by: Michelle

Hello,

Crohn's is a disease that takes over your life and doesn't seem to let go. I ahve had crohn's 4 sixteen years. Some days are good but food is not our friend. I understand it is so frustrating, one day you eat something and nothing happens the next day u eat the same thing and you are confined to the bathroom all day. Have you been checked for anemia. Unfortunately due to the fact that this disease is something people don't see the effects of until you've dropped 20-30 lbs or are in hospital there are not a lot of people you can talk to, even those that you consider friends.

Generally, the first year after diagnosis is the worst as they will give you every med that they can think of until they find the ones that work for you. Just do what you are doing, keep reading learn enough about this disease that you know more than they do.

Have you joined a local CCFA (Chrons' and Colitis Foundation of America) support group, they also offer great information on the latest research and other news on Crohn's. I have included their email address http://www.ccfa.org. If you ever need to talk you can contact me at michelle-durham@hotmail.com or you can add me on facebook Michelle Durham - I live in canada.

Take Care Hon and Keep your head up. I wish you all the best. I can't say that it gets better just more tolerable. I hope I helped.

Michelle

Mar 16, 2010
get better soon
by: Anonymous

My heart goes out 2u, notting as bad. Im 21 living in ireland ive had crohns 10 yrs before i got diagnosed. Its very hard but the last 5 years since id my son 5 yrs ago, ive been better than i ever was before. Theres days dont get me wrong when i cant get off the toilet & i feel like givn up. But 2 be honest every1 is different. Its hard when your havn a flare up, its seems 2 go on forever. If u need 2 talk im ere i understand xx suzzanne2138@yahoo.ie or u can add me on facebook. Get well wish'es, all my love xxxx suzanne

Mar 16, 2010
dear tired
by: Anonymous

MY SON IS 9 YEARS OLD . HE HAS HAD CROHNS ALL HIS LIFE. THEY JUST FOUND IT ABOUT A YEAR AGO. HE HAS BEEN IN AND OUT OF THE HOSPITLE SO MUCH.HE IS ON REMICADE TREATMENTS EVERY TWO MONTHS 150MG.HE HATES IT.HE's GOT SWOLLEN LIMP NODES.A HOLE ON THE INSIDE OF HIS NOSE.HE HAS EYE FLARE UPS. THEY TOLD ME HE HAD SEVEAR CROHNS.THEY SAID THAT THRERE WERE ABOUT 7 TYPES OF CROHNS AND HIS WAS THE WORST THEY HAVE EVER SEEN. IF YOU NEED TO TALK EMAIL ME I DONT MIND. ITS johnandtonda1@yahoo.com. have a great day.tonda.

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