Entecort for Crohn's Disease

by Germaine
(Delaware)

I was diagnosed with Crohn's roughly 2 years ago. Rather than start a medication regiment, I chose a more holistic approach. I embraced a gluten free diet beef free diet. I also cut back on sugar (began using aguava nectur), oil (began cooking with grapeseed and olive oil), butter (began using Ghee), and soy (as little intake as possible). Finally, I increased my exercise regiment from 30 minutes 3 days a week to 45 minutes 5 days a week. 2 years later, I feel and look great--healthy--but I still periodically suffer from immflamation. I rarely have flare ups. Though he acknowledges my healthy appearance,my doctor is concerned about the probabilty of the progression of the Crohn's in my small intestines. Following a recent colonoscopy and MRI, he has perscribed Entecort--9 mg for the next 60 days. He told me that it is a mild steroid. I really don't like the idea of taking medication--especially steroids--but given my painful bouts with inflammation I have agreed to take the medication. Once he determines that I am in remission, my doctor says he will perscibe a milder maintanence kind of medication. What is know of Entecort?


Thanks,

Germaine

Comments for Entecort for Crohn's Disease

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Entecort
by: linda mc murray

H i, my name is Linda,, i was diagnosed with Crohn's Disease last may and was extremely ill... My Doctor prescribed Entecort along with Pantassa and in no time I felt a lot better,, well I could at least get out of bed and go back to work. However , as i was weaned off Entecort; the symptoms came back and felt awful again,, after a a month of pain,, i was put back on Entecort but this time it did'nt work. I'm now on a new steroid with Entecort Pur~Nethol and B12 injections.. I'm doing good at the moment and have loads of energy!! Long may it last..Thank You so much for all You'r very personal comments,, They have been a a great support to me.. I don't feel quite SO scared now..

Entocort didn't work for me
by: Anonymous

I was on Entocort for several months and it never worked for me. My dr. also put me on some acid medicine which helped way more than the Entocort. So I was so confused as to how the CD medicine didn't seem to help my burning pains at all and the acid med did. He took me off of Entocort and now we are trying a home injection of Humira (an immune suppressor) every 2 weeks (it was orig. for arthritis but drs. have recently determined that it works for CD patients as well) Humira really seems to be helping. I haven't had the burning pains at all. They have completely diminished. I still have some diarrhea but not like I was before. I have had more help from this than anything. My dr is very optimistic that it will put me into remission. Seems to be wonderful so far!

Regarding my comment of March 25th
by: Anonymous

When I questioned my GI about the manufacturer's literature regarding the use of Entocort after 3 months he was VERY upset. He told me that doctors prescribe many things out of the scope of recommendations...FDA...he just prescribed a cholestrol med for diarreha,...so on....
However, he took me off of it then "fired" me.
So I'm off Entocort per GI, just took myself off Imuran - new holistic/chinese dr does not think my immune system needs to be depressed. Just recently started chinese herbs and acupuncture.
Still on Asacol.

WHAT?
by: Anonymous

IT'S A SHORT TERM STEROID. TRY SOMETHING LIKE REMICADE THAT TREATS CROHNS, NOT JUST INFLAMATION. BOTH MEDS ARE AUTOIMMUNE CRUSHERS, BUT REMICADE WILL ACTUALLY HELP THE CROHNS GO INTO REMISION QUICKLY. HOLISTIC OR LIFESTYLE CHANGE IS JUST THAT...A GOOD DIET AND GOOD HABITS. BUT SOMETHING LIKE REMICADE IS ABSOLUTELY NEEDED FOR A FLARE UP. DON'T MEAN TO PREACH, BUT I DONT WANT YOU TO GET WORSE. GOOD LUCK

Entocort
by: Anonymous

I've been on Entocort since November '09. In doing research I can across this on the manufacturers site (note that it says not effective after 3 mos). I need to talk to my gastro about this.
Following an 8 week course(s) of treatment for active disease and once the patient’s symptoms are controlled (CDAI <150),ENTOCORT EC 6 mg is recommended once daily for maintenance
of clinical remission up to 3 months. If symptom control is still maintained at 3 months an attempt to taper to complete
cessation is recommended. Continued treatment with
ENTOCORT EC 6 mg for more than 3 months has not been shown to provide substantial clinical benefit.
http://www.entocortec.com/PDF/ENTOCORT_PI.pdf

Entocort not working
by: Anonymous

I was diagnosed with CD 1 year ago and have been taking Entocort for 5 months. I haven't had any luck with this med either. It hasn't relieved any of the burning pains like I thought it would. My doctor then put me on some acid medicine which seems to really be helping. He is now taking me off of the Entocort. I now worry that the Crohns will worsen.

It seems like the acid med is what is doing the trick, not the Crohns med.

I don't understand.

Entocort
by: Anonymous

Hello, I have been on Entocort EC since January. I was taking 3 pills every morning and am now tapering off and am taking 2 pills every morning. I was so scared to take it when the doctor first prescribed it but read a lot about it. I usually have side effects when taking medications but with Entocort I didn't have any. Only about 10% goes into the blood stream and the rest is broken down into the small intestines. I'm not going to lie and say it has worked for me because honestly I haven't noticed any difference, it all depends on what I eat. Hope it works for you.

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