Dental problems involving crohns diseaseNEW by: Lydia D.
I also have intestinal failure (aka short bowel syndrome) after several operations and must drink around 3 litres a day. http://www.healthinplainenglish.com/health/digestive/short_bowel_syndrome/index.htm
Like yourself, have a very difficult time keeping half-way hydrated and am completely incapacitated in warm weather. I am very pale - an indicator of dehydrated. However, I have been on 6 drops of Tincture of Opium twice a day for the last few years, plus Entocort and Omeprazole and have managed to decrease the ileostomy output to around 2 litres a day - down from around 3 litres. I occasionally have to be put on a drip, but I try to avoid that.
I also have to supplement:
- Magnesium
- Iron
- Selenium
- Calcium and vitamin D
- Potassium (oral rehydration solution and/or LoSalt)
- Zinc
- The water-soluble vitamin C and B-complex (8 B vitamins), B12 (quarterly infusions - see below), - The fat-soluble vitamins (A, D, E, K - 3-4 weekly i.m. injections)
- Fresubin (astronaut drink like Ensure) to maintain my weight
If you have any muscle or joint pain especially small joint pain, you are likely to find that these will disappear if supplement with the above vitamins and minerals.
If you are so deydrated then your kidneys are also taking a knocking. You are supposed to produce at least 1 litre of urine a day or else your kidneys will get bunged up with stones and perhaps eventually even fail.
If I read you correctly then on a hot day you are drinking 6 to 8 pints of water a day. You should discuss therapy with either loperamide (aka Imodium) or Tincture of Opium. The only caveat is that you should not drink when on opiates. http://www.nature.com/nrgastro/journal/v2/n12/full/ncpgasthep0343.html
The WHO recommends that one takes 20 mg Zinc each day and that you take oral rehydration solution (ORS).
I suggest that you read the following paper, which will help you increase your quality of life.
http://www.medicine.virginia.edu/clinical/departments/medicine/divisions/digestive-health/nutrition-support-team/nutrition-articles/September2005.pdf
Your teeth problems are definitely also due to vitamin deficiencies that your doctors have not corrected. It is best to stagger vitamin intakee and take them throughout the day. Vitamin C is very important for healthy gums.
It is apparently too late to save your teeth, but you could save a few organs by requesting the proper treatment from your doctors.
The terminal ileum is where vitamin B12, bile and the majority of the fat-soluble vitamins are reabsorbed. See diagram here: http://www.cmaj.ca/content/166/10/1297
You are also at very high risk of osteoporosis because you will most likely not be absorbing adequate amounts of calcium and vitamin D, magnesium, etc. http://colitis.emedtv.com/crohn%27s-disease/crohn%27s-and-osteoporosis.html
Are you working in your current condition?
Jan 13, 2012
Teeth problems from dry mouth from chrones NEW by: Anonymous
yer i suffer iv lost most of my teeth not from lack of vitamins or pore oral higene , my stoma is cut befor the small intestine so i hav a hard time with absorbing water i drink about 2 or 3 on a normal day on hot days i can drink up 2 6 to 8 and mabe more to keep hydrated , aboout 1 1/8 to 1/4 gets absorbd and the rest goes straight thru me and into my stoma bag , iv got what the dentist says DRY MOUTH sindrome which is baisily my mouth dosent provide enough saliver, 1 benifer from not absorbing fluids is i can drink allmost a bottleof bourbon or other drinks and still be good to drive , my friends trip out when they see me drink more than them , then go through a breath tes ang i blow under .05
Jan 05, 2012
Dental problems involving crohns disease NEW by: Lydia D.
All of us with moderate to severe disease/diarrhoea, which interferes with (micro)nutrient uptake. Assuming that you have good basic oral hygiene, you have to get a handle on your diet and take daily supplements. Made an appointment with a nutritionist taking a current diet plan (what you eat on an average day) with you to determine what is missing in your current diet.
You should not brush your teeth directly after a meal, but wait at least 60 minutes. http://www.colgate.com/app/ColgateSensitiveNew/US/EN/Brushing-Right-After-A-Meal.cvsp
Bleeding gums, loose teeth are all a sign of inadequate nutrition. Include more dairy, oily fish, plant oil, chicken, vitamin C rich foods, etc., in your diet. This means no sweets, chocolate, sodas, colas, fast food, fatty food, etc., all of which have no to negligible micronutrient (vitamins and minerals) value.
You need to discuss substituting the following with your doctor and nutritionist:
Water-soluble vitamins - vitamin C, vitamin B-complex (8 B vitamins)
Fat-soluble vitamins (vitamins A, D, E, K), e.g. Fish oil
Iron
Calcium and vitamin D
Magnesium
Zinc
Selenium
Do your own research on gum disease and nutrition.
Caveat: Patients with severe disease in the terminal ileum will not be able to absorb the fat-soluble vitamins, vitamin B12, and possibly some minerals. Monthly ADEK injection and sublingual B12 or weekly B12 injections will be required in this case.
Certain medication can interfere with the uptake of nutrients:
