Crohns Disease question.
I was diagnosed in 1968 at the age of 16 with ulcerative colitis. Had ALL the surgeries ie:total colectomy..etc. In 1990, was diagnosed with Crohns Colitis. I had to have 17 surgeries that year to repair the bladder/vaginal wall, because of the crohns. I now have advanced crohns.....have had all the meds out there, such as Humira, Methatrexate,6-MP, Asacol...and, multiple others. I even had ostomy revision surgery in 2006, which was botched by the surgeon. This was to bring the intestine out a little further....however, things didnt go has planned and I was operated on a second time 2 days later, because the intestine gangrened. 4 months later, another surgery because the site from the first two developed a horrible infection. That surgery has never healed. I ended up in the hospital, again, for MRSA. I am totally frustrated, angry at times, and, just plain sick and tired of the whole thing. ANYONE out there, gone through anything as this? I am tired and 60 years old and retired last summer because I just couldnt work. I need support from anyone because I feel all alone with these issues. My friends/family try to be supportive, but, they dont have these problems. My doctors want to operate, again. NEVER EVER will I go through anything like that again.
If anyone has any thing to offer, please do. Thank you.