Hi im Helen i was diagnosed at the age of 20 i am now 33. I have 2 children and am a youth worker. I have a very good life even though i am in pain every day. I have tried lots of medication but am now currently not taking anything. I just live with it and am glad it isnt anything worse.
Aug 13, 2008
Take control by: Anonymous
One thing that really gets my goat is that the doctors really don't know what causes the disease and they are only treating symptoms. Many people manage their Crohn's by diet and supplements alone, but if you ask a doctor, they can't tell you that. It is not a Medical Association approved protocol. In fact one person who was asked by his doctor how he was controlling his Crohn's symptoms told the doctor about using diet and supplements. The doctor replied, "You may think that's how you're doing it." How patronizing is that? Anyway, for some diet info try: http://www.scdiet.org/
Also, make sure to take a multivitamin (no Iron) and extra vitamins E and C (helps with inflammation). Finally, and possibly crucially, you need to add a whey supplement. Look for one that is 98-100% lactose free with no added sugar or FOS and not chocolate flavored.
Jun 23, 2008
It's not all bad by: Kim
Hey I am a mother of two as well. I am 32 years old and was diagnosed with Crohns disease in November 2007. I went through a lot of tests before they finally did the colonoscopy. I was in pain, but not severely so. My main problem was the constant need to use the bathroom. Now that I know what's wrong and have begun taking medicine to treat it, I feel a lot better. Yes, there are plenty of horror stories out there about Crohns, but not all Crohns sufferers have the moderate to severe cases. A lot just have the mild cases, which make it no less problematic sometimes. So, do what I do, hang in there and do whatever it takes to keep yourself upbeat, not just for you, but also for your kids.
Apr 24, 2008
a normal life with crohns? by: michelle
hi im 23 years old with 2 children 2 and 4, i have been diagnosed with crohns about 12 weeks ago, but i do know now of people around me that have had it for years and i didnt even know so that makes me feel alot better my landlord as crohns and his life is pretty much normal, i have got myself down over last few days reading loads of bad stories of people with crohns but pulled myself out of that now as there are children suffering and people who have cancer, as far as i can see it my life asnt ended and i wont let this spoil the rest of my life and it doesnt in most people yes the pain is hard but somme people only get few flare ups in there lifes and lead a normal life.
Apr 24, 2008
i am where you are by: trish
hey i won't say don't worry cause i do all the time i just broke down last night because i am sick of all the pain, cause of crohns i have lower back problems and arthritis among other things but i've learned that it's good to get counseling because this is a depressing disease. it helps to have people you can talk to everyday that wont get tired of hearing how much you think your life sucks. just keep in mind to watch your stress and figure out what diet works for you get counseling so you have someone there to listen no matter what. but no this is not a horrible disease for everyone. some do everything right and it still goes wrong (me)others get lucky and it hardly bugs them IF they take care of them selves. i feel just like you do though like i dont have a happy future but sometimes i'm able to see the positive if you want to chat more email me at lilbitnutty247@hotmail.com
Apr 21, 2008
good news by: Anonymous
take things a day at a time . something will be there for us soon .
Apr 21, 2008
good news by: Anonymous
take things a day at a time . something will be there for us soon .
