Hi All,
Most of these posts talk about having more weight and considering it to be bad thing. But I was 70+ kgs 6 to 9 months back and now I am only 60 Kgs.
Every one who looks at me asks about what is the reason for losing so much weight and I can't tell them it is because of Crohn's. I have taken all types of treatment as per my Gaestro, but nothing
is helping me. I even tried herbal medicines as well
but to no avail.
Can anyone share my experience and does any one has any suggestion to gain weight, upto the point of my previous weight(!). I saw from websites that
Megestrol Acetate is prescribed for putting on weight in those with unexplained weight loss. But my doctor has not prescribed this to me...
Any solution for me, please respond.
Thanks,
RSM.
May 27, 2009
I'm not ALONE!!!! by: Jen
So, for about two months now, I've had a really bad flare up with my "Crohn's Colitis." I kept telling everyone my belly is swelling to the point where sitting is so uncomfortable. It's as if my belly is in it's own way. I'm a fairly petite person, who recently lost a ton of weight, and within a month, it's like I put it all back on. So frustrating. But mostly uncomfortable, and terribly painful at times.
I'm starting to exercise, as oddly enough, moving around makes it feel a little better. I'm hoping it'll help.
Hmm, this baby belly business better get fixed soon!!!! Or else, I may need new clothes too!!!
May 01, 2009
No Answers by: Cheryl
I wish someone had the answers. I for one have not a clue. This is my 10 th year with this and I'm still confused at times. What to eat, what not to eat.???
Last night a had some fruit juice. Today I am a mess. Tummy pokeing out with the ole swelly belly and I just plain feel sick. Running to the bathroom every 20 min while at work is no picnic either. I should have known it was coming because I have felt pretty good for a while now.
Please pass on any tips anyone gets.
Apr 26, 2009
So no one has any answers? by: Belle
im reading this because i was looking on the internet for diets for those with crohns. i have had it for two years now and have been stick skinny up until now. i just got put on humira on top of taking 12 asacol a day, and my tummy is huge. im fine with weight gain everywhere else but my tummy, its disgusting. and im bummed to find there are no answers or responses to these posts. i exercise, but i cant have lots of veggies, and dont know what to eat to help me lose weight. and i started modeling, so i have to get this weight off asap!!
Mar 15, 2009
Crohn's Disease/Type 1 Diabetes-Weight gain by: Anonymous
My gastroenterologist has commented on my weight gain in that he thinks my Crohn's is not flared up because you are supposed to "lose" weight with Crohn's. I hurt so bad that I only eat after 5-6pm. I thought it could be eating so late. I also have Type 1 Diabetes and am petrified when I go into a "flare" as I have to somehow keep something in me to keep the blood sugars up. It is VERY hard. Does anyone else have both diseases?
Also, when you hurt every day, you realize that you have to eat something. I feel my doctor thinks you starve yourself with Crohn's or you are not sick. Sometimes I get so hungry I could cry and when I do eat I hurt even worse but I have to eat.
Feb 02, 2009
So glad I'm not the only one by: Anonymous
Although we don't know of a solution, there is some comfort in not being the only one who swells up during the day. It is REALLY frustrating. Take care, everyone.
Nov 23, 2008
too fat to move by: Anonymous
Hi everyone
I have had crohns for 10 years. I was finally diagnosed first part of this year. By this time my symptoms were so severe that I had to undergo
surgery. I weighed in at 16stone 9 pounds when I was diagnosed. I was on steroids for about two months and during this time I gained weight and shot up to 18 stone. I had surgery end of july this year and since this time I have continued to gain weight even though I have been trying to loose some. I am not on any steroids at present I only take questran to stop me going.Friday I weighed in at 19stone 4pounds sat I weighed in at 19stone 7pounds and sunday I weighed in at 19 stone 12pounds. I feel terrible I am so miserable I cannot exercise because I am soo knackered all the the time my knees hurt all my joints ache I feel like I am too fat to move.I feel like dying.
Nov 01, 2008
wieight gain by: richard l.
I have been lifting weight for years but when I had a flare up I put on 40 pounds and the only thing I'm losing is bleed and my mind. I still have not figured what to do about it.
Aug 30, 2008
I've gained weight too. by: Julia
I had been on steroids but it's been over a year. I'm on remicade now. I still have flare-ups but am heavy through the belly too. I've had many people ask me if I'm pregnant. I get so upset. I had started to think I was the only fat crohn's patient until I read some of these postings.
Aug 28, 2008
Weight Gain by: Cheryl
You are not alone! I go from a fairly normal size stomach in the early part of the day to looking from 6 to 9 months preagnant by the early evening. I hate it but have no answers. I do know that trying to hold it in hurts.
If anyone has any answers please fill us in.
Aug 27, 2008
Weight gain by: Anonymous
I am newly diagnosed (4 months) with Crohns/colitis and also have gained 35 lbs with some of the weight before steroids. I am a vegan and feel pretty lousy as the only fat vegan!
Jan 23, 2008
swollen belly by: Anonymous
I have had Crohn's for about 8 years and yes, my stomach goes from flat to swollen in a second! my coworkers actually laugh because they don't understand how I can do that. I'm a very thin person as it is, so it certainly makes me look prego when my stomach swells. I try not to eat heavy meals, as I've noticed that makes it worse. But even sometimes when I barely eat it causes my stomach to swell. Very uncomfortable. Glad I see others w/this problem, as I thought maybe it was just me and that maybe I'm gaining weight, etc...
Oct 30, 2007
weight gain too by: Anonymous
i have started to gain weight too since i was put on steriods. i have gained about 10 or more pounds in the last month. my doctor says it is the steriods making me gain the weight but i cant be off of them yet. i have tried to exercise but nothing is working.
Oct 24, 2007
Water weight, not fat weight by: Rachel
Between general inflamation and God-awful steroids, I have had my share of being "puffy." It really sucks, especially when I am having a not-puffy day and everyone oohs and ahhs about my "weight loss", but I try to think more about being kind to my body and making it healthy than what I look like on the outside. My biggest problem was that my face would swell.
Oct 24, 2007
Bloating by: Marilyn
Hi! I know exactly how you feel...in the morning my tummy is flat...each time I eat I bloat and before long I can pass for 6-7 months pregnant. It is very uncomfortable and painful and has necessitated a change in clothing style...i.e. stretchy pants, flowing tops, etc. I do not believe it is just fat...try seeing a Naturopath, and if that is out of reach financially go to your health food store and buy the best probiotics...this will help a little...
Oct 23, 2007
WEIGHT GAIN by: Anonymous
I was in hosp. the girl in the next bed had crohns and was very sick BUT she was about 80lbs and was not doing very will. I was thankful at that moment to be over weigth. I was haveing a bad crohns attact but even my GI said i was in better shape than the girl in the next bed. Haveing some extra weight to fall back on is a good thing.
Oct 19, 2007
Weight Gain by: Cheryl
Swelly Belly! I think that's what we should call it. Swelly Belly That's me. I went to my Gastro yesterday and he told me to try Yoga or Palloties? Hello what is palloties? How do you spell it? I'm willing to try anything at this point. But that was his answer. Besides he wants to add another pill 2x a day to my already 8 pentasa, 2 Levbid, and 3 Bentyl. I'm a walking drug store.
Oct 19, 2007
Your Not Alone by: Anonymous
Im pleased I am not the only one who looks like she is preganant because of swollen tummy. I even had a little old man help me with my groceries at the supermarket, because he said in my state I shouldnt be lifting heavy things, then he wished me luck with the impending BIRTH!!
i DIDNT HAVE THE HEART TO TELL HIM THAT the cause of my swelly belly is due to CROHNS.
Oct 06, 2007
33 and huge by: Tina
Hi
I am so glad that I have found this site. I have been gaining weight ever since I had my son 4 years ago and now I am over 100kgs. I hate my body and my husband just says I need to diet and exercise more. Because every one on the planet believes if you have crohn's then you must be stick thin with rotting teeth my husband and friends find it hard to believe my delema. Before pregnancy I was at a good weight. My crohn's though was really severe and would last up to 7 days at a time. I found the only releaf was to lay in a red hot bath and would do this for hours on end as the pain was unbarable. Most times I would pray to god to take my life as I couldn't bare the pain any more.
When my son was born it changed. Now when I have an episode it lasts a maximum of 4 hours and is so intense that I vomit at the same time. But I know in my head that after going twice that I will at least be able to fall into bed. I am so exhausted from it. The down side is the massive weight gain. I am not saint but I don't eat McDonalds and KFC. I eat 2 piece of toast with vegimite for breakie, salad ( I can tolorate it ) and veggie soup and dinner is chicken and veggies most nights. But I look like I live at the fast food joints. Is any one else like this or am I the only one?
Oct 03, 2007
Weight Gain by: Cheryl
I am so frustrated with myself because of my weight. As it is I am almost 50 (couple of months away) and I won't let this stupid Crohns get the best of me as far a getting out and doing things. We stay pretty busy. But I always fell like the big fatty every where we go. I dress like a frump. Just to try to hide my bif belly. Some day's I don't ever eat. No appitite. I 've had to give up coffee in the mornings, don't eat breakfast either cos that would make it hard to leave my house. Thank goodness my husband and I are self employed so if I am having a bad day I can just go home. Fruits, veggies and salads just tear me up. I'm a little sick of chicken breast, but no matter what I do even with excersise I'm fat! With bird legs!
I wish someone could come up with an answer.
Cheryl
Oct 02, 2007
Too fat by: Anonymous
I wold like to know people's opinion on this also because ever since my resectioning a year ago, my weight has gone up tremendously!!!! I was diagnosed with Crohn's in October of 2005, put on Steriods and various courses of med, continuing on steriods on and off (more on) for the next year and in August 2006, I had my surgery. My appetite comes and goes, and I have not quite found what my "trigger" is for what does not agree with me. I am also having liver issues, that have been ongoing since March. I am sick and tired of feeling like this, but even more so being 40+ pounds heavier....I feel like I'm the only"fat" Crohn's patient>>>>
Oct 01, 2007
Weight gain by: Cheryl
I don't eat that much. Can't deal with salad's. Although I love to eat salad's they don't like me. I end up awake and in the restroom all night. How do we loose this big pregnant looking gut and diet?
Sep 30, 2007
weight Gain by: Anonymous
My e-mail address is Biteme987 -at- aol.com. Would like to discuss this but the cut and paste thing is just a pain in my whatever. Cheryl
Sep 29, 2007
Finally someone like me by: Haley Miller
Yes, I have also had this problem of gaining weight and looking pregnant...I have no idea why this is and I asked my doc and he doesn't have any answers either...Its nice to know I am not the only one though
Sep 27, 2007
Is that a baby in your belly?? by: Pooper
With the thought that everyone is different and react differently to things, ive learned that for me, it works when im in the swelling phase to stay away from meals and rather eat small doses all day long. The swelling stays to a minimum and im not as miserable. Ive read that getting into that habit actually kicks up your metabolism ~ i need all the help i can get!
Meats seem hard for me and i usually avoid beef unless i just cant take it anymore ( i have a weakness for juicey cheeseburgers ). Im swollen right now and what i could wear on monday, i cant today. I have so many different sizes in my closet for all my many "phases".. my husband accuses me of finding excuses to just biy more clothes :-)
Ive actually had a little kid ask me if i was pregnant once. How depressing that was!
Sep 27, 2007
Any answers? by: Anonymous
Just how do you control weight gain?
Sep 26, 2007
prego? by: Gin
Yes, I do agree... with the swollen tummy from the steriods and the crohns - I look prego all the time. Additionally, I tend to hold my tummy as it hurts so much, for me sometimes holding it or rubbing it helps... and well that makes me look even more pregnant.
