Tired all the time.......

I am always tired from my Crohn's like I've just ran a marathon.

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Chronic fatigue

by Heidi
(Ontario, Canada)

I have found that taking Pentasa 4000 mg/day, keeps the inflammation at a bearable level, but the smallest stresses (eg. Christmas season) will create immediate discomfort and genuine fatigue.
I am allergic to fish and unable to take the fish oils. I take effexor now to keep the stress down as much as possible.
I find the fatigue really interferes with my quality of life and am wondering if anyone can give me any ideas for boosting my vitality without boosting my immune system?
My specialist actually wants to start me on Imuran in the fall as I'm not improving ... can anyone offer information on personal experiences with this?
I was only diagnosed with Crohns last year, but I'm absolutely certain I've been dealing with this for a decade or more.
Thank you for any information you can provide.

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fatigue

what to take if your fatigue, and you have chrons disease

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So tired of feeling sick!

by CC
(Ontario, Canada)

Hello all,
I am 32 year old woman from Ontario. I became sick when I was 15, but wasnt diagnosed until 6 months later when I was 16 years old and bedridden!
I have been lucky, for the last 17 years I have had a 10 year remission which ended a year ago. I have always been on medication, and when I was diagnosed I was put on prednisone and mesasol. During my remission and through my 3 pregnancies I was still on mesasol for maintenance. Since I was well for so long my "brilliant" GI suggested I wean myself of the mesasol. What a mistake! I have been sick ever since. I had a colonoscopy in February followed by my Dr instructing me to go on Pentasa. 12 pills per day, 3 pills in 4 increments. My pharmacist was concerned the dosage was too high. In the beginning I started to feel better, but never was completely without pain/diarrhea. I have been trying to see my GI but he is booked up until December. Somedays are so severe for me, with pain, diarrhea and bleeding that I cant handle it so I take immodium and tylenol to try and make it through the day! I usually need to sleep with a heating pad and have even had 'accidents' on really bad days!
Obviously the Pentasa isnt working for me, and my family Dr wont even prescribe me steriods (even though I begged her), but she is pushing the GI to see me on an emerg basis.
What would you do? Should I just go to the local hospital? I know whats wrong with me, I just cant get anyone to help me!!

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tired all the time

by Neale
(Cape Town South Africa)

I am 61 years old . I have had crohns for about 18 years , I have had two ops . I am however , from what I have read one of the lucky ones . I have very little pain or bleeding . I am however tired all the time . In the morning I am ok for the first two hours , but there after I dont last longer than an hour and then I have to rest or sleep for an hour and so it goes on throught out the day , every day . If I do any physical or indeed mental work during my good moments I dont last more that a half hour . My doctor says he does not think my symptoms are crohns related , there must be something else wrong with me . I have had all other medical possibities checked out and I am told everything else is fine . Is anyone having similar symptons ? . I really want to get to the bottom of my problems as life is so frustrating when one can not plan anything and /or do anything through out the day . If these are indeed crohns problems then my doctor must try and find some solutions and I must keep bugging him , but if I am the "the only one , as he says , then i must try and find some other answers .

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6MP and fatigue

has 6MP made anyone sick?

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Feeling Tired All The Time

by kim
(millington, tn. usa)

Lately I feel tired all the time. I was diagnosed about a year ago with Crohns of the ileum. I have pills for everything but some days those pills aren't any help. Some days if I eat certain foods I have no problems, other days those same foods can really send me into the bathroom all day. I have realized though there are certain foods I definitely can't have like vinegar and lettuce or alot of milk at once. I have read so much till I'm blue in the face! Everyone out there thinks they have all the answers it seems. I'm tired today of the whole battle!! I really need a friend who understands. I feel very alone.

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crohns and fatigue

by rachael
(england)

i have been diagnosed with crohns about a year ago,since then i have had surgery, part of my bowl and appendixe out!i am currently on no medication,but recently been getting symptoms,diorhea,joint pain, and fatigue! i can handle up to a point! the diorhea etc! but the fatigue is killing me as i am self employed and work really hard,can anyone suggest anything to help my energy levels back up? i am taking multivitamins and omega oils!

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muscle ache and fatique

by Claire
(London)

Hi, any advise on genralized muscle ache and fatique.
I was diagnosed in 2007 and only have suffered from two flare ups. Not taking any medication at the moment, but did have a reaction to Ascol about a year ago. Gastric sysmtoms are fairly controlled with weekly accupunture session, would recommend this to others.

I work full-time as a nurse, which at times is stressful, not one to take time off, but feel as i am struggling at the moment. Any suggestions would be greatly appreciated.

Thanks

Claire

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a cure for extreme fatigue other than taking caffeine suppliments

by Carol Zurawski
(Wilkes Barre Pa.)

How do people with crohn's stay awake? My 26 year old son was recently in the er for overdooing caffiene suppliments to stay awake at work. He went knumb arms and legs and chest, bp was up and vision was off, so much so he could not drive, which he does for a living.
Can anybody suggest an answer for the fatigue other than caffiene crap please>>>>>>.

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Partner has Crohns, tired all the time

Hi all, I am 25 from Australia, my 22 year old partner has Crohns and was diagnosed in 2008, not long after I met her. I am concerned about her in a number of ways but recently she has been going pretty well, She is on 6mp and iron tablets as she has/had anemia. I am wondering whether anyone else has had experiences of low energy and intimacy levels dropping off with your partner to basically nothing as far as sex goes. We still hug, cuddle and all that. I lover her, just want to know any peoples thoughts or advice on it.

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fatigue from crohns

Is it normal to experience fatigue everyday, even without doing any major movements other than walking?

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Dealing with physical and mental fatigue

by Mick

I am just feeling so tired. I am so tired of fighting the Crohn's and not enjoying or being able to even eat food. Any suggestions?

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tired with crohns disease

by Zea
(australia)

what can i take do stop me from being tired constantly no mater what i eat or how long i sleep i just cant get into feeling energetic

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fighting fatigue

by Christine
(Blue Springs, MO)

what is the best way to fight fatigue. I am 42, I was diagnosed with Crohn's about 5 years ago - I have a very high tolerance for pain and ignored the pain and symptoms for years and years. I had surgery and was better for 3 years, but the fatigue is about to do me in. my husband says you need to work out. are you kidding me - some days i can barely get out of bed and go to work and you want me to work out! anyone have suggestions how to boost energy level - the coffee is not cutting it. i take medication to help me go to sleep. i wake up before the alarm goes off, but mid-day i wish i was in bed. any ideas?

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Very sick chrons fibromolgia arthitits disc diease fatigue bloating

by Felicia
(Scottsville it)

I feel sick every day so much pain fibrinromitis scolosos disc diease
Weight gain weight loss severley deprest I am on 90 mgs of
Methadone for pain 8 mgs of Xanax 1200mgs of soma
I have no social life Im restricted at home I have major
Hot flashes that last for a long time it hurts to drive or have to
Run errands I have bouts of diarrah costapation I have one
Pasion to ride my horse but it hurts to bad I use to have
A career and friends I feel useless

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Fatigue and crohns

by Laurie
(CT)

I recently had a bowel resection to remove affected tissue for Crohn's disease. It has been 6 weeks. I first thought my fatigue was due to the surgery but now am realizing there may be more to it. My energy seems okay when I am moving or participating in an activity; however, when I sit down I can literally fall fast asleep for hours. I usually sleep through the night but sometimes, like last night, I woke up at 3:00 am and then 4:00 am to move my bowels. That activity makes me up for the day. Is there anything that can be done to improve my enery levels. I take a daily vitamin. Has anyone taken an anti-inflammatory to improve fatigue levels?

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