Crohns Disease advice & WARNING ~ BEWARE
by Marydon Ford
After a life of bowel problems, at age 39 I was finally diagnosed with Crohns disease. Two yrs of prednisone nearly killed me, I was an immobile vegetable from the steroid. No one at Kaiser Permanente would listen, it was their way or no way. I put my foot down & asked for a resection, which I finally got after a long battle. (Kaiser Permanente up until the diagnosis, 'patted my hand', handed me tranquilizers & ignored my Crohn's symptoms, sending me home.)
I went thru surgery with no ill effects for a few years & then became active Crohns again. ASACOL was my savior as I refused all steroid treatment ever. I am today still on Asacol.
ASACOL carried me for 10 to 15 yrs. with no problems at all & I had a nice life, occasional 'little' issues but no major medical problems. About 10 yrs. ago I started having little problems occur & all KAISER PERMANENTE gastro Drs. wanted me to take different forms of chemo to treat the Crohns. We left Kaiser in 2005. In 2007 I had some real blockages & was hospitalized several times in 10 mn. period. The new gastro Dr., too, preached chemotherapy treatments. I refused to the day I die to do that. (KAISER DRS. don't bother to take the time to listen, they are rushed on timeframes for patients ... I should tell you how they nearly let me die from a heart condition that was a birth defect they never told me I had. Umm-hmm!)
Feb. 2008 I was operated on for a second resection, I demanded. All Drs. wanted chemo treatment, period. Once the surgeon got in side
of me, he could find NO Crohns activity at all, but this 4" to 6" area that was viewed on a Cat scan & several other tests was merely a massive build-up of SCAR TISSUE.
NOT ONCE DID ANY DRS. EVER MENTION SCAR TISSUE TO ME
Once the surgeon started to remove the scar tissue the bowel immediately started to restruct itself to widening (I had a fishline passage way til then) itself, the colon color became healthy & the tissue was fine. The surgeon, Dr. Kevin Hurrt, came into my room the next day & immediately stated 'it is a good thing you didn't take those pills'.
Had I not been fiesty & stood my ground I would have listened to all these Drs. & put my body into harms way with all the horrible side affects that come with the Imuron, Ramicade, etc., possibly causing more deadly medical issues.
Also, I had spoken to another young man who had 7 surgeries & eventually found a Dr. to reconnect him ... he explained to me since he has been taking Aloe Vera orally several times a day, he has not had to see a gastro Dr. in 10 yrs. & there are no traces of Crohn's at all.
My suggestion is to NOT take every Drs. advice. Do your research yourself, then decide sensibly what is right for you. I am now searching for a new gastro Dr. I cannot afford to trust my body, a gift to take care of, 900% to any Drs. after the mistrust, misadvice & misdiagnosis. The internet is full of wonderful articles to help guide you to make the right decisions.
TTFN ~ Marydon