Home
CROHN'S FORUM
Newsletter
What's Crohns Disease
Crohns Treatment
Crohns Symptoms
Crohns Disease Diet
Crohns Medication
Crohns & Fish Oil
Articles & Stories
Crohns Cure?
Crohns Information
Just Diagnosed?
Coping With Crohn's
Advice on Crohn's
Take a Survey
Links
Contact Us
Disclaimer
Privacy

Coping with Crohns

I am 38 years old. I was diagnosed about a year ago. I had a 90% shut down of my upper and lower intestines with a partial lung collapse. I was hospitalized for nearly a month before they finally figured out I had Crohns. Along with my Crohns I also have ulcers and severe acid reflux. I have suffered with horrible intestinal and back pain. I am currently on Prednisone,Pentasa,Metronydizole,and Imuran.

Without a doubt, this disease is extremely painful but it helps to know I am not alone. Thank you to all of you sharing your stories.

Sincerely

Kim




Comments for
Coping with Crohns

Click here to add your own comments

Apr 09, 2008
 living with Crohn's
by: Cindy

Sorry to hear about your pain. I was diagnosed 26 years ago and have tried several treatments. You will find the right combination for you. The side effects of the drugs are a problem too, also trying to hold a job. It does help to know you are not alone. Pentasa didn't work well for me, I gave it a few trys, I now take Asacol, Endocort, purinethol- protonix- sometimes prednisone and flagyl and levaquin. Do you have skin problems? Mouth sores or tongue cracks? I have been on several other medicines over the years that have worked well for a while. I have had to have the pyloric are of my stomach dilitated a few times (trying to avoid surgery)
Was able to put off surgery until Jan this year, so I've done pretty good. I didn't jump the first time I was told to have surgery
Jan 26, 2008
 Coping with Crohn's
by: Butterflybugs

Some times you feel like you are the only one our there going though the pain you are in. I enjoy this web site as well. I like being able to talk with others about what I am going though and seeing what they are doing to get though each day. I am waiting on some results right now to see if I have to have surgery again. So keep your head up high you are not alone in this. If you would like to keep in touch on by e-mails my e-mail is friends24forever@aol.com
Jan 10, 2008
 Coping with Crohns
by: Anonymous

Anytime you need to vent I am here for you. I find it very helpful to talk to people who understand what I am going through since most people cannot seem to comprehend it or just assume we have a bad case of diarrhea. =)



Click here to add your own comments

Join in and write your own page! It's easy to do. How?
Simply click here to return to Ask A Question About Crohn's Disease