my 11 year old daughter is suffering she has crohn's and was diagnosed eight long months ago. she is on about her tenth medicine. does any one have any advice on help with the pain??
My son is now 9 years old and was diagnosed with Crohns when he was 6 - he went on every medication available and finally went on Remicade. He is having surgery in the next month or so, but the drug still works wonders. It is believed taht the damage was done prior to Remicade and thats why the surgery is necessary.
See if your daughter is a candidate for Remicade.
Feb 18, 2009
kids with crohns by: mrs davie
my 12 year old daughter was diagnosed with crohns in dec 2006
She was put on prednisilone straight away to manage the flare up & kept well for 2 years with the help of pentassa & iron tablets.
This is now her second flare up & a new oral liquid diet was prescibed called modulen.
she now has a nasel gastric tube due to the volume that she had to take orrally.
Dont lose hope it can be managed with a bit of insight & a lot of patience, i as a parent was not keen to try steroids again on a pubescent girl.
Modulen can restrict the family for the period of weeks its prescribed, but the change after two weeks on this was enormous
Sep 14, 2008
Child with crohns by: Anonymous
Hi there my son 12 was dx with Crohns disease about 5 years ago and stayed in a lot of pain with continous flars. He is currently on Remicaid infusion for the last 2 yrs and it has been the best thing that has happen to us. Before Remicaid he would have abcess and fistular all the time. Maybe you should inquire about the Remicaid. By the way, he is no longer on any other medications besides Multi Vit and Calcium.
Jul 01, 2008
Son 13 has help with... by: Anonymous
My son is 13 and was diagnosed over 3 years ago. We have had our ups and downs but more ups than downs. He seems to hold steady on Pentasa 1000mg twice a day as well as Endocort 9mg once a day. He takes his normal iron and vitamin C daily. Other than that he hasn't had to change his diet or make any other drastic changes. Hope this helps!
Mar 19, 2008
response to daughter with Crohn's by: Anonymous
My 11 year old son was diagnosed a year ago. He is on Remicade infusions now which seem to be working. He tried other medications first. He was also on steroids to put him back into "remission" several weeks ago. We tried 6mp but it didn't "hold him". We have great doctors at Hopkins that have been very helpful. He was taking 15 pills a day until the infusions "kicked in". It is difficult having this disease in Middle School. I also obtained a 504 plan to have in place in school in case he needs it (extended time on assignments, assistance with make-up work when absent, automatic pass to bathroom without raising hand and waiting). What medications have you tried and do you have good doctors?
Jan 28, 2008
help for crohns by: Anonymous
Hi there. My daughter is 12 and was disagnosed with Crohns a few months ago, after suffering for years. It was to the point that she would scream with pain and couldn't stand up. We rarely left the house. She was put on a feeding tube, which although seemed quite appaling at first, has been a complete Godsend. Within 3 days, she was just about back to her old self!!
