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Bizarre Crohn's

by Jazz
(Australia, Canberra)

Hi,

Does anyone out there have Crohn's which never technically flares up? I was diagnosed with Crohn's 6 years ago when my appendix burst (as a result of Crohn's) but since then I have never had a flare up but often have diorhea, bloating and sever pain. I have been to the doctors many times when I have felt this pain but after a blood test to determine my celiactic protein levels I was always given the all clear. Here I am wondering if I even have it and I rarely go to the doctors now when I feel pain.

Jazz




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Bizarre Crohn's

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Aug 12, 2010
 bizarre?
by: Paul

not really that odd at all i've gone nearly 10 years without a major flare up and like an idiot thought that meant i could ignore cd and stop taking drugs, now after a multitude of tests guess whos back i have severe ulceration in my small bowel have had to have 3 iron infusions in 6 months and am now swallowing the usual cocktail of drugs,am totally exhausted and have had to quit work. stay on top of it jazz
Apr 12, 2009
 NOT SO BIZARRE CROHNS!
by: Angel

Hi, sounds familiar. Blood tests DO NOT and I repeat DO NOT always have to indicate active CD even when you are having a flare and are indicative of active disease in every other way. This can and does occur more frequently than most Drs would have us believe. There is no such thing as an average human being and the blood tests done are based upon such a thing. Get yourself a Dr. who has a clue and listens to you who know your own body and mind. Get them to perform a colonoscopy (not that awful) and if nothing showing get a capsule endoscopy done. INSIST - they are costly and so they don't offer one as norm. You have one life and it is not in your mind - keep going until you get the treatment you need. i still looking for a Dr who knows his/her stuff but I haven't stopped hollering yet!! :) :)

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