Any tips on travelling when you have a flare up?

by Ms Eire
(Ireland)

I have crohn's for over 5 years, this week has been really bad, I'm going on a long business trip and am distraught at the thought of having urgent need for the bathroom etc.. any tips or advice would be greatly appreciated.

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Travelling Tips NEW
by: Annette Young

Hello there,

Thank you for your question. I wanted to answer it because I am quite sure that the topic affects many, many people. These days, everyone travels much more widely and to any Crohn's sufferer who has to go away for business or even for a holiday, travelling can turn into a bit of a nightmare.

The more anxious you become about your travels, the more likely you are to experience a chronic flareup, so the key to being able to travel successfully lies in the preparation.

At the end of the day, no one can guarantee how they are going to feel at that time. But the better prepared you are, the less likely you will need your backup plans.

Take pads wet wipes, changes of clothes just in case of embarrassing 'motions', ensure that you take your medicine, and any aid is for relaxing. The more relaxed you can be, the less likely you are to have trouble. Food can be an issue when you are travelling so take some tried and tested favourites with you so that you know it wont upset your digestion. Avoid drinking alcohol and make sure you drink plenty of water so that you can stay hydrated.

Providing you have organised your travel plans, there should be less concern. If you are away on business make sure you have all of your material with you, so you can research and learn and be prepared. Try to take as much stress out of the equation as possible. If you really are worried and are going on a long flight for example, you can make the stewardesses/stewards aware, if this will give you peace of mind.

In the US. you can apply for a 'Can't Wait' card which gives you priority access to the bathrooms when out and about. You may never need to use it.

I have attached a link and hope it helps.

http://www.crohnsandme.com/living-with-crohns-disease/crohns-tips.aspx


Best wishes,

Annette

talk to airline
by: Gill

Sorry, I know this is a bit late as you've probably already travelledby now but it might help for the future.

When I travel I always speak to the holiday company/airline 6-8 weeks before travel to ask for special needs assistance. I specifically ask for a seat next to the toilet. I also have mobility problems so ask for assistance to & from the departure gate. Most of the seats allocated for disabled passengers are at the front of the aircraft which are next to the toilets. Whehter the airlines mainly keep these for people with mobility problems, I'm not sure (i.e. this might be the main reason I get allocated these setas). It's certainly worth stressing the Crohn's, though, and your need to be near a toilet. Touch wood, the airlines operating out of the UK have been very good on this over the years.

Also, make sure you have medication innyour hand luggage - I tend to take a dose of lomotil just to be on the safe side. I also take anti emitics with me. Finally, I carry a spare pair of underwear & tissues/wipes just in case.

Hope this helps & that you have/had a good trip.

talk to airline
by: Gill

Sorry, I know this is a bit late as you've probably already travelledby now but it might help for the future.

When I travel I always speak to the holiday company/airline 6-8 weeks before travel to ask for special needs assistance. I specifically ask for a seat next to the toilet. I also have mobility problems so ask for assistance to & from the departure gate. Most of the seats allocated for disabled passengers are at the front of the aircraft which are next to the toilets. Whehter the airlines mainly keep these for people with mobility problems, I'm not sure (i.e. this might be the main reason I get allocated these setas). It's certainly worth stressing the Crohn's, though, and your need to be near a toilet. Touch wood, the airlines operating out of the UK have been very good on this over the years.

Also, make sure you have medication innyour hand luggage - I tend to take a dose of lomotil just to be on the safe side. I also take anti emitics with me. Finally, I carry a spare pair of underwear & tissues/wipes just in case.

Hope this helps & that you have/had a good trip.

Long Trip???
by: Dave

I was diagnosed 12 years ago and am 55 years old. Have been married 33 years and have a Daughter that was married 5 years ago and lives in San Diego. She married a guy stationed there in the Navy. I live in Greenfield, Indiana and have never been out to see her and hear awful remarks from my family and wife frequently. I don't want to sound like a "Kranky" old man Ms Eire, but when I first found out I have Crohn's Disease and later studied and realized what it is, I found myself thinking about ending my life. Then I realized how hard this would be on my family and the guilt they would probably feel. I turned this problem over to the Lord for some answers. You can't worry what others say or think of you. Some of my friends think I am a little cold but I can't listen to people complain about dumb things, you know that causes flair-ups. I drive an 18 wheeler and drive 456 miles each day on the same route. I know where all the places I can stop if I need to.. My wife wants us to get on an Airplane and fly to various places around the world, Ireland is one place she would love to visit. I have told here over and over I don't feel comfortable with the thought of being confined in a small space in case of another flair-up.. Ms Eire, the only advise I can give you is just don't go past your confort zone. You know what you can and can't do. You will meet people that think you are strange because you just feel comfortable being by yourself and love being home when you not at work. I read you mind, Right?? I am about six weeks away from retiring and it breaks my heart that me marriage is probably not going to last much longer. We just have got to pray for understanding and also realize that it is hard for some people to know what is involved for us to get through the day! Please write a response to my letter and I promise my next one won't sound so much like doom and gloom.. Basically, you've got to know your boundaries and stay within there and don't worry about others remarks.. I am a very happy and Spitual Person and looking forward to talking and helping others after retirement.. Ms Eire, talk to God.. Go out and help someone in need and watch the wonderful blessing you will begin to feel in your heart.. Don't watch the news on T.V. Put yourself in a position that you can realize there are many wonderful people on Earth.. Remember, this is the short life, the next one is the eternal life! If the trip you are taking is too long, don't take it.. Do what feels write to you! Love Dave M

TRAVELLING
by: BARBIE

I ALWAYS CARRY IMODIUM PLUS THEY ARE A LIFE SAVER

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