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A Long Year

by Rafael
(New York City)

I writing to you from New York City it has been under a year that I've found out that I have crohn's disease, I should start by saying I've really been stress about this. I've had two flare up in the last 8 months. I loss my job of 6 years because i couldn't keep up with the work, I thou they understood and I was wrong, I feel I live in a bathroom at times, I've lost so much weight and feel I have no that understands me, I know the person I was before this happen to me, and i just can't funtion the way I did before. I know it could be worst. I feel like it has control of me and I can't get a hand on this disease. just want to screeemmmmm!




Comments for
A Long Year

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Jan 20, 2009
 hope this helps
by: Anonymous

I have lost just over 60lbs now and can understand how you feel. Im 21 this time last year i have bought my first house with the person i loved. As things started to get worse i stopped going out and got really depressed. As a result im now on my own with a house to pay for. Im starting to get my life back on track but it all came as a big shock, it does get easier to deal with.

Im currently going through a really bad flare up and so far this time i have not taken time off work although i dont no how much longer it will last.

I have recently started seeking Homeopathic remedies recomended by another sufferer and them seem to have help a lot. So far the flare ups are not as often.

Hope this helps. Ive never look on here before and i no to me its just such a great comfort to know im not the only one.
Apr 16, 2008
 A Long Year
by: JoAnne

I understand about you wanting your old life back. I was so out going and loved to work and be around people. Now I stay at home, because you don't want to be away from a restroom too long. I don't feel any of the medication that they give me helps and I cry, because I worked too hard to get the job of my dreams and great pay just to lose it for some crazy disease. I wish there was answers for you but I haven't found any in 9 years. So just start looking for jobs that you can do from your home and pray that someone comes up with a cure of us all.
Apr 16, 2008
 A Long Year
by: Anonymous

Rafael, I wish there was something I could say to make you feel better. My son, 19, was recently diagnosed with Chrons and suffers too. He has lost 60 lbs. in 6 months. Just know that people are thinking of you and praying for you in the hopes that at some point your disease will stabilize and go into remission.

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