32 yr. old woman with HORRIBLE Flare-up
by Sick and Tired
I am writing on behalf of my daughter - who has been diagnosed with Crohns, Irritable Bowel Syndrome and Erythema Nodosum. We live in Ontario - Canada. She is 32 yr. old and was never ill a day in her life until the end of Sept./2010. Her life prior to that was a very busy one. She would go to the gym b/4 work every day....then go to work.....and then work with her students at a large equestrian facility....and ride her own competition horses. Her life has come to a SCREECHING halt !!! She has had 3 colonoscopies, a pelvic ultra-sound, an abdominal ultra-sound, and a CT Scan (where you drink the liquid and they follow it through you). She gets blood-work taken every week to monitor the inflammation levels in her body.....and right now we are waiting for her to be referred to a second G/I....so she can have the tube put down into her stomach....and if nothing new is seen....then perhaps the pill you swallow with the tiny camera in it -will be their next move. She is still on Prednisone (although this is being reduced by 1 tablet each week)....and she is on one of the 5 ASA's (called Mezavant)......and she is also on Morphine for the pain. She can no longer work....and can no longer teach her students or train her own horses. She is living at home with us. This flare-up has now been going on since the end of Sept. 2010....and it is now April 2011 (approx. 7 months later)....and still no end in site. Is there anyone else out there who has suffered with a flare-up this long??....and if so, what did you do or what medications did you use to help you through it? Thanks so much and any comments or suggestions you may have would certainly be appreciated. Signed by: The Mother of a Daughter............ who is Sick and Tired of being Sick and Tired !!!